with the exception of warfarin which i know we all need to stay alive! and to help relieve some symptoms of APs, how well do you feel the other drugs work? I took all sorts at first ,had a prednisilone drip then a course of cyclophosthamide (sorry think thats how you spell it) followed by steroids and azothyoprine (sorry for the awful spelling) I don't ever recall feeling much better for taking them . The only drug that i can say that has a definate effect on me is the warfarin, which i have to take because i clot without it. I can't say that i have ever had a day without pain or felt normal (forgotten what normal is ) for as long as i can remember even when my INR is high although admittedly thats not often! I stuck with the other drugs for about 2 yrs but never really felt any better so just stopped taking them, and can't really say i'm any worse, then i felt really disillusioned and quite helpless thinking well if iv'e got an incurable disease and the treatment doesn't work for me whats the point of having a specialist when there is not much else they can offer! so i haven't seen a specialist for about 5yrs . am i mad what would you do? I just feel that i am trying to ask him to 'fix' me and i'm expecting the impossible because i can't be fixed, so i just plod on , don't ask for help then don't feel disappointed when i don't get any! Thankyou all so much for reading my post mully xxxxx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.