Saw this lovely doctor yesterday and he was really helpful and knows all about Hughes and related conditions.
He said I have clearly had some kind of flare up and my symptoms are allied to fibromyalgia and so is going to treat me accordingly. Gave me a steroid injection and I've to report back in two weeks; if no improvement will try medication.
It is so tedious but I have accepted that I need to pace myself and try not to do too much. My physio is going to give me some muscle strength exercises and has suggested building up from a ten minute walk each day. My lovely hubby is doing loads round the house, because my cleaning lady isn't well, but I do feel bad at how much he has to do.