Irini Greece

[Givemehopefor]

Hello to everybody!I am disappointed to find out that many people have to live that way..

So young, my husband , a physics professor, to have to cope with this devastating disease...

I don't; want to see it straight in the eye...

We were never accepted to any clinical trial , nor to Orion!!!

I do not know why when we do meet the criteria

Recently my husband had a fall and a vertebra fracture..

We cannot decide to have or not to have a kyphoplasty!

If anyone had this experience please let us know..

Kind regards

[easterncedar]

Hi, Givemehopefor. I had to look up kyphoplasty, so really don’t have anything to offer about that, but I can say that procedures under general anesthesia sometimes cause sudden deterioration in patients with PSP. I have read that it may be an effect of the process in which body temperature is lowered during surgery. It’s not a certain thing, but worth talking to the doctor about.

My guy opted for local anesthesia after consulting with his surgeon.

[Givemehopefor in reply to easterncedar]

Thank you for the information

They say that kyphoplasty is under local anesthesia and SEDATION..

So I thought it safe..

Yet you never know if eventually they operate under general anesthesia and that's why I feel uncertain..

I do not have confidence due to other cases and I m very worried to have to push my husband to go in this ...

I am also very worried to let the injury heal on its own because the disease is vulnerable to spine injuries and he might not be able to stand upright.. I do not know what to do...

[Araucana in reply to Givemehopefor]

Just to add that my mum has CBD and recently had a cataract operation under general anaesthetic. She was fine afterwards, no deterioration in her CBD.

[timbowPSP in reply to Givemehopefor]

Could take out ur pendulum and dowse for it? (Not being funny/facetious. Many people use this to help them decide which way to go.) Best wishes Timbow PSP