Navigating PSP, Embracing Individual Journeys

[Zerachiel]

Saw this blog entry, so well put.

pspawareness.com/blogs/psp-...

[pspchronicles]

Laura Louizos Executive Director of the Coleen Cunningham Foundation established the CCF for PSP Awareness after her mother, Coleen Cunningham, passed in 2019, six months after a PSP diagnosis. Laura is an avid blogger who wrote this blog, and more. The Foundation's FB page provides current and relevant information on PSP-CBD. I am the Chairperson of the recently created Support and Advocacy Committee. As such, our mission is to continue raising awareness and support for PSP-CBD. You can expect to see a higher profile of the committee's work across many social media platforms soon. I would encourage all on this forum to visit CCF's FB page (public) and view previous and future blogs, the newest research, clinical trials, and other important news/events.

healthunlocked.com/redirect...

Tim

[Richard33 in reply to pspchronicles]

Tim,

I was just looking at the link Zerachiel kindly provided and there you were as Chairperson. You are the busiest man in PSP advocacy! I will keep tabs on the site.

Well done as ever!

Richard 🙂

[daddyt in reply to Richard33]

Richard, we would love you and Ruth to dop into a Zoom meeting. We have several attendees who are from Oz and make a great contribution to the Zoom meet.

Tim

[Richard33 in reply to daddyt]

Tim,

Shucks - I think we (me!) would be too shy.....🤣

[daddyt]

Nah... I think not. Give it a whirl, I promise you won't have to sing. I think you can bring a unique perspective to a meeting... your girls too, for that matter.

Tim