My husband's condition has been very unpredictable in recent months and I've been apprehensive about making plans that take him outside his routine. I had however bought tickets a long time ago for an outdoor concert with a favourite artist - expecting I might have to go alone, or not at all.
My wonderful husband listened carefully when I asked a couple of weeks ago, and let me know he really wanted to join me. The organisers made it very straightforward to arrange for an "accessible" experience.
The concert was amazing, we sang, swayed and cheered till neither of us had any voice. (OK, I was the fangirl but he seemed to enjoy it too). It was tiring, but on the long taxi ride home, we held hands, kissed and he whispered sweetly - just like evenings years ago, before I'd even heard of PSP.
I'm reminded of a scene from Shadowlands - "The pain then is part of the happiness now. That's the deal"
I feel deeply grateful for each new memory we're able to make.
Wishing you all happy moments and lasting memories.
Written by
Bergenser
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my sister in law (54) has been in hospital for 10 weeks after a dreadful fall , last Thursday we also made memories by managing to get her to her sons wedding! On the way back to hospital she sang her little heart out with sheer joy !
Thank you for a most up-lifting post. It is reminder to make sure that we don't let the negative dominate our lives, that we seize what opportunities are possible to give joy.
I hadn't heard the quote "The pain then is part of the happiness now. That's the deal" How perfect.
So pleased to hear of your visit to the concert and that you had such a good time.
We have cancelled so many outings and holidays but we are now planning to go to Wembley for a concert at the end of the month! Reading about you going to a concert has encouraged me to go ahead with it. How did your husband get on with the noise and hoards of people? We are also staying in London overnight. The amount of planning and things you have to take for such an outing!
The event organizers worked with "Nimbus disability" to capture the special requirements up front, so his wristband would let him access the right facilities with no questions asked. We were able to avoid most of the queues and crowds. I noticed there were also areas reserved for those who were not in wheelchairs but for other reasons needed to sit down in a less crowded space and there is an access code for that.My husband isn't so sensitive to sound so the noise levels were fine by him - though obviously it was very difficult for him to talk to me during the performance.
My son wasn't there this time, but last time he came to a festival he wore air defenders as he does have sensory issues with noise - possibly he was the only teenager wearing them but who cares if it makes you comfortable. I'd suggest you bring a set in case they are needed.
And yes, there is so much planning and preparation and stress - but worth it if all goes to plan. Hope you have a wonderful time. 🎶🧑🎤
Alas it didn’t😢My daughter who was taking us was in hospital a few days before. We thought about taking a taxi but my husband wasn’t interested. I think his condition is progressing and it was all too much effort. Thankfully my daughter is ok now, which is the main thing.
Sorry to hear you didn't get to your concert, glad your daughter is better. It is difficult to make plans with the progressive nature of the disease. I've booked time off in August but not planning anything more than a few days ahead. Take care 🫂🌻
Loving the ‘seize the day’ vibes this post brings it definitely made me smile 🥰 so glad to read that you and your husband had a great day out together making the most beautiful and precious memories. Much love to you both 💕 x
I must listen to more Hozier - what I have heard I have liked. Well done you! I am always apprehensive when I take my wife out, but it is always worth the worry and effort when it is done. We are at the point where we are not going out to see anything - but just the other day she indicated she wanted an adventure. I guess I have got to be braver and face the fact that if she is prepared to take the risk, then we must plunge once more into big outside world and all the unknowns!
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Making plans
Husband Recently diagnosed with PSP aged 41!
