Supporting a loved one with psp

[Fizz12]

My dad was diagnosed with psp around 8 months ago (originally misdiagnosed as Parkinson’s). He is bed bound, can’t really speak anymore, and is very sleepy all the time. I see him fidget a lot when he is awake and wondered if there’s any item you could recommend for him as something to fidget with? Or anything in general you’ve found helpful in these final stages. Thank you 🙏🏼

[Bergenser]

Dear Fizz12

I'm sorry to hear that your dad is at such an advanced stage of PSP.

I would suggest you read this previous post by Zerachiel

healthunlocked.com/psp/post...

Other ideas - for distraction when restless, bubble wrap can feel therapeutic, as can tactile squeezy stress toys - those can also give useful stimulation of the hands and fingers. I've bought fidget toys (spinner, infinity cube) for my husband but he already lacks the dexterity to enjoy them - they help me though ☺️

Offer massage of hands, arms legs and feet, if that is accepted it can give him some relief from pain, tensions and restlessness - and convey your care and love.

I wish you the best in the situation, with hope and hugs. 🌻🫂

[Fizz12 in reply to Bergenser]

Thank you so much, this is incredibly useful. I’ll try all of these

[LuisRodicioRodicio]

Hi Fizz12!

Bergenser's suggestion regarding Zerachiel's communication seems excellent and timely to me.

Perhaps these additional suggestions can also be useful to you:

On final stages your dad can still hear you, even if is non-responsive. Encourage each person who is significant to your dad to go in individually and talk to him.Let him say what his heart feels . To talk about the good times, the difficult times and current events related to the family. The person in that situation has been processing her life — what has this been all about life? We can all help that person let go.

Dying is not a medical event. It is a social, communal event. You just need someone who can support and guide you in those moments, doctors and nurses included.

A big hug.

Luis

[Fizz12 in reply to LuisRodicioRodicio]

Thank you Luis. So important to remember to talking even if they’re not responsive. Thank you

[LuisRodicioRodicio in reply to Fizz12]

Sorry. There was some error in the translation and a lack of proper farewell.

A big hug.

Luis