Hi All
I hope this is allowed. I came to this site to read about other peoples experiences with PSPA, as we navigate this journey with my Mother in law who was officially diagnosed in December last year. We had been looking for answers for around 5 years with nobody really knowing what was happening and continuous mis-diagnosis .
Its frustrating to think of the how things could have been different had we had the diagnosis and knowledge but here we are in the advanced stages.
My sister and I will be running the London Marathon next week for PSPA, we would desperately like to hit our target and raise as much money to help people who are going through the same thing, The club nobody wants to be a part of.
Ive added the link below.
justgiving.com/team/TeamFio...
I have found this site so valuable so thank you to each and every one of you.
Hannah x