Eye sight : My mum has double vision ,one on... - PSP Association

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Eye sight

Blitzford72 profile image
9 Replies

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ?

Concerned daughter

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Blitzford72 profile image
Blitzford72
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9 Replies
carehope profile image
carehope

Hi Blitzford72 ! Definitely polarized sunglasses to cope with sunlight and a neuro-ophthalmologist is the specialist to provide the most knowledgeable help with the double and blurred vision . Prism glasses have proven to be helpful in some people's situations , but I think have limited success. Maybe your regular ophthalmologist can give you a referral to a neuro-ophthalmologist . Definitely worth looking into ! ( Unintentional pun 🙄🫣 ! )

Blitzford72 profile image
Blitzford72 in reply to carehope

Thank you for replying where can you get them from ??will it be mums specialist that can action this ??sorry this is so new to me x

Millidog profile image
Millidog

Hi , As previous poster has said prescribed prism lenses can help. For sunlight my husband has Cocoon glasses. They are dark lense glasses that can be worn alone or fit over glasses. They have a lip at top and base and thick sides to protect from sun. They are very reasonably priced, different styles and sizes to suit a wide range of people and needs. They have a website to buy on line and many opticians stock them .

Blitzford72 profile image
Blitzford72

Do you have the web site please x

carehope profile image
carehope in reply to Blitzford72

Hi again Blitzford72 ! You probably already figured this out , but just in case : Enter "Cocoons sunglasses" online . You can probably purchase them on Amazon also. In the States they can also sometimes be found in pharmacies/drugstores. As Millidog said, they're not very expensive and have the advantage of having models that are designed to be worn over prescription eyeglasses. It's really great that you're trying to help your Mom have better vision. My sister had loved to read and that sustained her in the early years of her PSP ordeal. Unfortunately as things progressed , she could no longer read and we switched to Audio Books . Best to you and your Mom and I hope that you can find a highly qualified neuro-ophthalmologist who might be able to help your Mom out with this issue !

Take care ,

Elise

Jen295 profile image
Jen295

Hi Blitzford 72. You could start with your own Optometrist who could then refer on to Opthalmology and an Orthoptist who could prescribe stick on prisms to alleviate the double vision all NHS services. They are easily changed without having to have new specs all the time.

Good luck , this disease has made me have knowledge in areas I'd never even thought about.

Take care

Doublereeder profile image
Doublereeder

Or your Mum's neurologist may be able to refer especially if they have an opthalmogy department in the same hospital.

Marazion profile image
Marazion

For us PSP association gave mum some prism glasses to try but they didn’t work for her. Her consultant confirmed the changes to her sight - light sensitive, can’t look up or down so need to place food in her line of sight, can follow a fist not a finger etc. She has light sensitive glasses from the optician which she wears all the time inside and when outside. Plus use a hat when warm and extra sunny.

RosieLadyDaisy profile image
RosieLadyDaisy

Note: If your mum usually wears bifocals, it’s best to keep to them (with the prism incorporated ) rather than varifocals because as walking and balance is obviously poor they can make the ‘patient’ dizzy.

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