One more battle

[Kimmyliz12]

Trying to make a claim on my life policy which includes terminal illness cover. What a nightmare seems I have the wrong type of terminal illness if I had cancer no problem even though there are treatments. But don't suffer from PSP for which there are no treatments. Neurologist can't put a time limit on it and there in ĺies the problem. I'm so sick of it all., the condition is hard enough to try and live with but having to fight for every little thing is destroying me. Sorry for the rant but sometimes it's just all too much.

[Hidden]

Feel free to rant.

[Kevin_1]

Hi

No, your not ranting,

It's an appalling thing. Would it be worth contacting a specialist solicitor on Life Policies. Generally they will give you at least an half hour for free to help you decide if you want to go forward.

I m wondering if there is an Ombudsman for example. (I'm assuming you are in the UK).

It may be that their small print, if it is indeed in print, is unlawful.

I do wish you well with this.

The other way to go is to ask your Neurologist to give an estimate based on current life expectancy statistics.

Wishing you the best,

PSP is hard enough...

Kevin

[kenh1 in reply to Kevin_1]

Insurance companies are normally covered by the financial services ombudsman. But you have to have exhausted the companies complaints procedure before you can take it to the ombudsman. Ask the insurance company for their complaints procedure.

Follow it and don't give in. Best wishes. Ken.

[Dadshelper]

Rant away, we will listen and never judge. Without sounding to cold could your neurologist give some type of written statement with average life expectancy of PSP on it plus a date he gave you the Dx?

Good Luck.

Ron

[honjen43]

Rant all you like here, Kimmyliz! We understand and have experienced the same or similar "brick wall"!

I could not seem to get Hospice or palliative care for my hubby, as the doc in charge said he had at least 12 months, and because he also said he had a same conversation with him at breakfast and did not see him for the next day, I could not get POA! Then he died a week later - as I anticipated.

YES, completely understand! Sadly, all the fighting takes it out of you, and is exhausting.

Success though would be exhilarating! And will mean access to good care in the later stages.

You will be so pleased you ARE of sound mind! And can sit there and scheme how to make the system work in your favour!! Dont get mad, get even!

Send them the PSPA leaflet, get diagnosis and a guess at life expectancy from your neurologist and go from there.

Imagine Kevin will have the best arguments and info!!!

Dont give up!

Big hug

Jen XXX

[Tippyleaf]

Outrageous !! You rant away - we all need to be aware of this injustice. Great advice from others. Definitely worth a complaint. I would also let PSPA know they may be able to help too

Take care and keep fighting

Love Tippy xxxx

[Dance1955 in reply to Tippyleaf]

Yes my friend all of the above take time out if you need too but keep up the good work for all of us everything is a fight but one day we will have some respect for the desease 💕

[AJK2001]

Outrageous. Hope you have the time & strength to take this up as it is just so not right.

Good luck and keep us posted on this site.

[Sunnyday68]

Have you tried continuing health care. Am going through it now with my very slow but thorough solicitor.You probably know about it. Success helps on where you live.Just thought I would mention. Chris

[racinlady]

Would you be able to get your primary care doc to make some kind of statement about the range of life expectancy you have? I found our primary care Dr to be better about this sort of thing than the neurologist. In fact my husband's first neurologist said, "You won't die from PSP, it will be something else such as aspiration pneumonia". That was so untrue. because he never really had the swallowing issues most people do with PSP.

Don't give up. There will be a way to get what you deserve. It's just so frustrating to have to fight so hard. It's probably time to get a lawyer involved to help you if the doctors can't or won't. I'm sorry you are having to go through this. Life is so unfair sometimes! Hang in there. . . .

Pat

[Nanny857]

So sorry you are having to fight for this. As if PSP isn't bad enough to cope with. Praying you will have the strength to follow up on some of the suggestions already mentioned and get positive result. Good luck xx

[Kimmyliz12]

Many thanks for all the kind words and suggestions. Ì will pass on my experience to the PSP association if nothing else maybe they can provide information on this disease to insurance companies as there is a complete lack of understanding out there. On a happy note planning a lovely family day which is far more important x