My sister has passed away in her sleep this morning. She was diagnosed two years ago and was somewhere in the mid phase of the disease. She slept and never woke up. Today was her daughter’s birthday and she was super excited that they were going out for dinner. She died of a cardiac arrest.
At least she is no more suffering. Rest in peace, sister
My heart goes out to your sister's daughter & you of course. Sending Gentle Hugs... Granni B
Thank you very much. This forum is amazing. It connects us like one family going through same unfortunate circumstances
Yes it does. It is a comfort to have so many kind, supportive, understanding friends. Take good care of yourself & Treasure the Good Memories of your sister. Sending hugs... Granni B
It is sad that she died. At least it was in her sleep.
That’s comforting. Thank you so much. 🙏
Oh I am so very sorry! Prayers going up for your family 🙏🏻
Thanks a lot 🙏
Thanks a lot. It means a lot 🙏
You and your family have my deepest condolences.
Ron
Thank you very much. 🙏
Thank you very much. 🙏
So very sad to read your news. It is heartbreaking that she died on her daughter's birthday. The only consolation is that she went quickly and had happy thoughts. God bless you all at this sad time.
Marie x
My condolences.
So sorry for you but going in her sleep is a good way to go.
Love Jean xx
Thank you very much. It means a lot. She went peacefully is the only comfort I can draw from her passing. I dreaded the tube feeding stage.
I'm so sorry for the loss of your sister and to you niece who did not get to spend her birthday with her mother. Thankful that she is no longer suffering and passed in her sleep with excited anticipation of dinner with her daughter.
So sorry for your loss, but I hope you can take comfort that it was peaceful
Love Tippy xx
I’m so sorry to hear about your sister’s passing. I hope that you and her daughter will raise a glass and celebrate her mom’s (your sisters) life today during your nieces birthday.
You have my deepest sympathy.
Sending hugs from I SewBears
Such a sad time for you all. May she rest in peace and you and her family find strength in all your happy memories that she has given to you, and you to her. Thinking of you all xx
My sincere condolences to you in the loss of your sister. Your heart must be very heavy now though you are grateful that she is free at last. I know what the loss of my sister would mean to me. Blessings and peace to you. XXX
Anne G.
Thank you very much. The only consolation is her peaceful departure. She was only two years into PSP.
My deepest and sincere condolences to you and your family. May your sister Rest In Peace.
Kerry
Amen. Means a lot. Thank you very much 🙏
What a shock for you all. I am so sorry for your loss, but has already been said, she went to sleep with hope in her heart and may that be a comfort to you all, especially her daughter.
Praying for peace and comfort to fill your hearts and minds at this time.
Juliet
Sending you my love, this is such a traumatic disease. I hope the heaviness of your heart will lift and you will always have the memories of happier times with your sister 💖
Thank you so much. It’s traumatic and ugly. Looking at the patient makes you feel sad and extremely helpless. God bless everyone who is suffering.
So very sorry for your loss but glad it was peaceful and quick. At least you have not got to watch this terrible disease gradually take everything from her x
Sending you all my love. My sister also died in her sleep. I miss her every day. It's a dreadful illness xx
I'm so sorry you are facing this loss.
At least she is no longer in torment.
Wishing you well in this time.
Warmly
Kevin
Thanks a lot, Kevin. We were still exploring this horrible disease. Everyday was a new day for us. We tried to make her as comfortable as we could. She went quite early after her diagnosis but it was probably better for her to go before suffering the last stages of the disease. 🙏
Dear one, I am so sorry about your loss, and so unexpected.
With my mother deep into the illness, it makes me think that at least she and everyone around her do not have to witness the degenerative phase of this unforgiving illness.
Take gentle care. Holding you and your family in my prayers and thoughts.
Antonella
Heartbreaking for you all and especially on her daughter's birthday. There are no words that I can offer to make you feel better right now but one thing I am sure of, that cardiac arrest stopped in its tracks the worst to come, and there are blessings in that your sister and family did not have to face the heartbreak and hopelessness that the disease bestows upon the sufferer and carer alike.
Look after each other; grief is a long hard journey but you'll find your way through it step by step.
With love to you and your family,
Hils
X
So sorry for your loss but at least it was peaceful for her.
I feel sure she is walking by your side.
Big hugs
Sue x
Thank you so much, Sue.
She departed peacefully on our mother’s bed where she was most comfortable. Our mother passed 8 years ago.
I don’t know whether to feel sad or relieved on her departure. She isn’t suffering anymore and that surely is a consolation.
RIP, she didnt go through the horrible stages of this disease, she was freed on a good timing, my condolences , RIP
My deep sympathy to you. These losses seem more poignant when we reflect on the long-suffering and courageous victims of PSP, CBD and MSA.
My own sisters are dear to me, and it must be hard for you now. Hugs...and good memories, in time.
Marilyn
She was suffering. She is no longer helpless. She is free. Thank you very much for your kind words. 🙏
So sorry for your loss..she is in a better place not lost in this cruel disease. Was she bedbound and how old was she. I wish the angels would give my dad his wings this disease is so cruel x
Thank you so much. She was 57. She was bed bound for at least a year. Couldn’t walk on her own. She could sit up with struggle. She could slowly eat on her own but was mostly fed by someone. Her speech was hard to understand. Her neck was very stiff and she was scared to move it. She thought moving would break it.
I am so sorry for your loss. My wife is 2 years from diagnosis and mid stage and I would be beside myself if she were to pass so suddenly. We all know we are working on an abbreviated schedule here but can we ever be truly ready for this? As others have noted, she went peacefully in her sleep and was spared the last 2 to 5 years of this hellish disease. Silver linings. You and your family will be in my prayers.
My condolences to you and your niece on the loss of a sister and mother. As others have said she passed away with happy thoughts, looking forward to her daughter's birthday, shopping and dinner. Thankfully PSP didn't get a chance to ravage her body completely and she passed away peacefully. Sending love, Nanny857xx
Sorry to hear that you lost your dear Mum, at least she was spared the huge torment of the disease as it progresses.
Sending love
Kate xx
Thank you so much. We are relieved that she didn’t see the most horrible stages of the disease. She is definitely in a better place. RIP.
Sorry for your loss and her daughter losing her mom. Always difficult. I lost adrien after 3 yrs pneumonia in lungs.
That’s how my mom went last fall as well. It was a shock that seemed too sudden, but at least she didn’t struggle and was able to eat and engage until the end. May the memories of your sister see you all through this loss. Big hugs
Thank you so much. I feel helpless when I think of the unforgiving disease but feel relieved that she is free. Her disability was painful to watch. I haven’t slept properly since her passing. It was an absolute nightmare. I wish all the patients well and peaceful end to this cruel disease. Hugs to you, too. XX
Your sister will no longer suffer rip.x
Hi, I have just read your post. Please accept my sincere condolences. PSP is such a vile disease.
Your sister died without too much suffering and that is a good thing.
You now need to take care of yourself and your niece.
Love and hugs
Pat xx
Thank you very much, Pat. When I mention the disease to people they think it’s some sort of psychological disease. It started with a severe depression. It was February 2017 when she started to show signs of depression and “lost” appearance. She would cry at the smallest things and we thought she was overreacting. She’d hit her car twice while driving so we took the car from her. She deteriorated by the day after that. Last one year was a rapid decline. She couldn’t do anything on her own. Her ordeal is over and that is the only comforting thought. Thank you again 🙏
Good morning. I don't think many people understand PSP. Trying to explain it takes too long.
My husband was so frustrated when he couldn't express what he wanted. Frequently it left both of us exasperated. He knew everything that was going on around him but most people, including his mother, were convinced that he didn't understand.
There is no quick way of explaining this vile disease and people lose interest when you try.
I miss my husband so much it hurts. He is in a much better place now. The only good thing about that is that he is no longer suffering.
Take care of yourself and your family during this sad time.
Love and hugs
Pat xx
Thank you, Pat. It indeed is impossible to explain the disease. I definitely noticed that she was alert like any other normal person and knew what was going on around her. She’d open her mouth as soon as I lifted the spoon to feed her. It seemed she couldn’t see or couldn’t see properly because of the angle of her eyes but she could see everything around her. I still can’t believe we experienced this horrible disease. It seems like a nightmare. Hugs back XX
We have experienced the most vile disease. I watched it take Les over 3 years (we were married 42 years). It is so horrendous to see and we all do our best to deal with it while our hearts are breaking. I, along with so many others in this form, feel robbed. There is absolutely nothing we can do but care. It takes its toll.
Les would become so angry and frustrated which was totally opposite the man I loved.
Life goes on and at some point we will manage our grief. I just haven't found that yet.
You have to look after yourself and family as the fallout of losing someone you love to this disease can affect your health. I know from experience.
I wish you all the love to deal with this.
Hugs
Pat xx
Adrien my hubby birthday tomorrow going to be hard my daughter and I going grave. He died July 15/19. When they finally used feeding tube bottom not close what a grave discovery. He literally starved before pneumonia took 8 days no food, water it was awful. My daughters seem over it but not I. I cry constantly. I have health issues not helping me. Why can’t I find peace. I have hard time coping every day life. I know he in better place. He only 65.
sad to hear 😞 god bless your sister
I am so very sorry for your sisters daughter and you dear lady .
Your sister was so young
I am thinking of you
Love Lynda 💜
I’m so sorry for your loss. Sending love your way x
Thanks a lot 🙏
Her suffering has ended and that is the most positive thing about her passing.
Just seeing your post, wishing you and your family peace as you now move into the next stage of care giving - caring for yourselves. Acknowledging the sadness, feeling the relief that she no longer suffers and does not have to further experience the ravages of this disease. Love and hugs to you. Kathy
Extending Communication when Speech is Gone
ranting gone wild
My beautiful momma is gone
Mums gone!
