Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for May 2019

PSP symptoms

My husband was diagnosed with PD in 2014 in 2017 was changed to PSP. He has never had hand tremors, thank God but now his whole body is doing the jerking...

My husband was diagnosed with PD in 2014 in 2017 was changed to PSP. He has neve...

fletchnojob

•5 years ago

6 Replies

Power or Manual Wheelchairs?

Hi guys, John's mobility has taken a sharp turn downwards. So many falls, so many holes in the wall, etc. I have a transfer chair from Amazon that I have...

Hi guys, John's mobility has taken a sharp turn downwards. So many falls, so ma...

Abrecheisen53

•5 years ago

21 Replies

123 for PSP and CBD

123 for PSP and CBD Hi everyone what do you think about this I first thought I’d ot because if Ken was in respite and I couldn’t really communicate with him...

123 for PSP and CBD Hi everyone what do you think about this I first thought I’d...

Dance1955

•5 years ago

11 Replies

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very negative effects after chewing slow release capsule

Tillie went on respite in a nursing home. The staff did not realise that she cannot take her medication with just water but needs to take them with apple sauce...

Tillie went on respite in a nursing home. The staff did not realise that she can...

Tillie281

•5 years ago

11 Replies

Kathy's dry eyes,non blinking

Hi to all, lately Kathy's eyes are getting more iritated by psp and non blinking I give her eye drops and wears dark glasses outside but has to go to bed......

Hi to all, lately Kathy's eyes are getting more iritated by psp and non blinking...

Birdman34265

•5 years ago

9 Replies

Not Seizures, cramps.

Hi Sorry not to have been around for a while. Life is just too busy at the moment. It's been a poor spring and I am so far behind with the sowing. Some time...

Hi Sorry not to have been around for a while. Life is just too busy at the momen...

Kevin_1

•5 years ago

42 Replies

PSP experience with Kaiser

Has anyone had any experience dealing with doctors at Kaiser Permanente treating PSP.? We are in California and would like a more knowledgeable Doc.

Has anyone had any experience dealing with doctors at Kaiser Permanente treating...

Sfen

•5 years ago

17 Replies

Sunday May 19th, 2019

It snowed in the mountains overnight. I think it looks like someone sprinkled powdered sugar on them.

It snowed in the mountains overnight. I think it looks like someone sprinkled p...

Dadshelper

•5 years ago

8 Replies

Doing good at times and then setbacks ugh!

Here we are a couple of weeks ago at my sister-in-laws birthday party.....Bob was doing so good as you can see....he has been battling PSP for at least 5 years...

Here we are a couple of weeks ago at my sister-in-laws birthday party.....Bob wa...

JubileeRanch

•5 years ago

9 Replies

Sunday afternoon drive

Yesterday was a beautiful day for a ride! I took my Mom down memory lane and visited some of the special places she enjoyed with Dad My Dad loved taking a...

Yesterday was a beautiful day for a ride! I took my Mom down memory lane and vis...

bazooka111

•5 years ago

7 Replies

Let Go & Let God

I realize that we all come from different backgrounds and beliefs, but I am praying for all of you in here. I lay down in the evening (after my Mom is asleep),...

I realize that we all come from different backgrounds and beliefs, but I am pray...

bazooka111

•5 years ago

5 Replies

Wow! What a Surprize

PSP Awareness Week - UK The Ice Cream Challenge Click on the links below to see the coverage....

PSP Awareness Week - UK The Ice Cream Challenge Click on the links below to see ...

daddyt

•5 years ago

18 Replies

CBD & Turmeric- food suppliments

My wife (PSP) (residing in Scotland UK) has been taking Cannabidiol (CBD) - ingredients hemp seed oil, hemp paste (leaf & flower) - a food suppliment I get...

My wife (PSP) (residing in Scotland UK) has been taking Cannabidiol (CBD) - ing...

David750

•5 years ago

12 Replies

Thank you

Thanks all. Bill was so anxious I called 111. Paramedics great. I need to talk to nurse specialist as to what I might expect in early days. So difficult as...

Thanks all. Bill was so anxious I called 111. Paramedics great. I need to talk t...

jabberwocky45

•5 years ago

3 Replies

Leaning to one side

Early into PSP. Is leaning to one side a symptom? And how does everyone cope with not being able to see looking down? Any ideas please thank? All so new....

Early into PSP. Is leaning to one side a symptom? And how does everyone cope wit...

jabberwocky45

•5 years ago

15 Replies

A change of scene

To everyone who responded to my last post, I thank you. I decided to no longer wallow in self pity but to take some action and Mary and I are staying with our...

To everyone who responded to my last post, I thank you. I decided to no longer w...

Willow_rob

•5 years ago

14 Replies

Good Morning Momma!

The one true blessing I am incredibly grateful for...is having my Mom living with me. Yesterday was a really tough day for her ... her right leg just decided...

The one true blessing I am incredibly grateful for...is having my Mom living wit...

bazooka111

•5 years ago

9 Replies

Love that smile!

I took sweet Momma out for breakfast this morning, after our visit to her primary care Doc! Along with everything else, she still is diabetic 😔. She’s such...

I took sweet Momma out for breakfast this morning, after our visit to her primar...

bazooka111

•5 years ago

4 Replies

This is PSP Awareness Week in the UK

PSP Awareness Week - Ice Cream Challenge PSP is a rare neurodegenerative disease in the same family of Parkinsonisms like ALS, with no treatment - cure. Join...

PSP Awareness Week - Ice Cream Challenge PSP is a rare neurodegenerative disea...

daddyt

•5 years ago

9 Replies

Strawberries / Chocolate makes her smile

Happy Mother’s Day - My Momma loves her strawberries! I hope everyone is doing well; we are struggling with walking, and things have changed almost over...

Happy Mother’s Day - My Momma loves her strawberries! I hope everyone is doin...

bazooka111

•5 years ago

15 Replies

PSP problem

Regarding your PSP problem guys, how would you like to check your diet? Too much eating flesh might be the cause of it especially pork.

Regarding your PSP problem guys, how would you like to check your diet? Too much...

Guerl

•5 years ago

8 Replies

PSP/CBD support groups

I recently became aware of carers for their spouses unaware of groups in their area (UK) . Please check out group locations on the PSP Association's website...

I recently became aware of carers for their spouses unaware of groups in their a...

David750

•5 years ago

5 Replies

This strange new life!

Well yesterday was Rene”s funeral. We had a beautiful humanist ceremony and his older daughter gave an incredible eulogy. I tried so hard to keep it small...

Well yesterday was Rene”s funeral. We had a beautiful humanist ceremony and his...

Tippyleaf

•5 years ago

47 Replies

Advice needed for forthcoming CHC Assessment

Hi all - daughter of fairly new member, Welsh Rugby here! Thanks to all of you who have welcomed my dad into the fold and for the advice he's received to...

Hi all - daughter of fairly new member, Welsh Rugby here! Thanks to all of you ...

WelshRugbyDaughter

•5 years ago

23 Replies

Back again

Hi people , newbies and old friends ,it’s sometime since I last posted so I thought I should put a metaphorical pen to paper . It is now nearly two years...

Hi people , newbies and old friends ,it’s sometime since I last posted so I tho...

Georgepa

•5 years ago

55 Replies

Big Changes are happening too quickly

In only a few months the wheelchair has become one of the most important parts of our life. CH does not fall so much but then he does not do so much. Panic...

In only a few months the wheelchair has become one of the most important parts o...

crab2093

•5 years ago

15 Replies

Final closure to suffering

My wife, Anna Sarasu passed away peacefully after a few gasps for breath which didn't come! Thanking God for the infinite support He gave these past 5 years,...

My wife, Anna Sarasu passed away peacefully after a few gasps for breath which d...

Bhakthan

•5 years ago

34 Replies

HIP PAIN

Hello Once Again, My Mother-in-Law is now in bed all day and night and only gets up to use the bathroom and go to her meals. She has fallen a couple of times...

Hello Once Again, My Mother-in-Law is now in bed all day and night and only gets...

5greyhounds

•5 years ago

7 Replies

Has anyone tried walking poles or walking sticks to help your balance when walking?

I was wondering if anyone has tried the walking poles or walking stick to help with balance when walking,? https://youtu.be/umjdLSoIY3Y...

I was wondering if anyone has tried the walking poles or walking stick to help w...

moparkie715

•5 years ago

26 Replies

Keep Positive!! 1000 marbles

As I sit here on this MOM's DAY. I reflect on our journey (Ray & I). It has been several years since his diagnosis but, I am blessed with a very supportive...

As I sit here on this MOM's DAY. I reflect on our journey (Ray & I). It has bee...

seawink

•5 years ago

13 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2019

PSP symptoms

Power or Manual Wheelchairs?

123 for PSP and CBD

very negative effects after chewing slow release capsule

Kathy's dry eyes,non blinking

Not Seizures, cramps.

PSP experience with Kaiser

Sunday May 19th, 2019

Doing good at times and then setbacks ugh!

Sunday afternoon drive

Let Go & Let God

Wow! What a Surprize

CBD & Turmeric- food suppliments

Thank you

Leaning to one side

A change of scene

Good Morning Momma!

Love that smile!

This is PSP Awareness Week in the UK

Strawberries / Chocolate makes her smile

PSP problem

PSP/CBD support groups

This strange new life!

Advice needed for forthcoming CHC Assessment

Back again

Big Changes are happening too quickly

Final closure to suffering

HIP PAIN

Has anyone tried walking poles or walking sticks to help your balance when walking?

Keep Positive!! 1000 marbles

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive