Strawberries / Chocolate makes her smile - PSP Association

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Strawberries / Chocolate makes her smile

bazooka111 profile image
15 Replies

Happy Mother’s Day - My Momma loves her strawberries!

I hope everyone is doing well; we are struggling with walking, and things have changed almost over night. Moms right leg is to the point of dragging as she tries to walk ....

Hurts my heart ... I love her so much.

(Virtual hugs to everyone out there)

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bazooka111 profile image
bazooka111
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15 Replies
dollydott profile image
dollydott

I remember that stage well. It's scary how quickly things change and heart breaking to watch and we can't stop it.☹

Keep encouraging her to walk as long as she can.

Nice to see she's still smiling

Sending hugs to you both and I hope you both had a lovely mothers day

Lynda 🌹🌹

bazooka111 profile image
bazooka111 in reply to dollydott

Thank you for your encouragement. It really is scary. Yesterday was the first day that I really had to step back and take it all in. She was struggling to get from one side of her bedroom to the bathroom.

I’m trying to wrap my brain around all of this - I knew this was coming, but ....

I have to figure out what to do next ... when she can’t walk to the bathroom on her own.

Sigh ... reality check

dollydott profile image
dollydott in reply to bazooka111

Mum described it as her feet not doing what she was willing them to do .Going to the bathroom on her own became impossible once she started falling which I can't remember you posting about so maybe its not happening with your mom yet but be very aware it may become more of a problem for her .

During February 2017 mum fell 23 times all bathroom visits I was either at work or it was the middle of the night.

She had fallen many times before this but not as much. I realised someone always had to walk behind her to the bathroom the only way to keep her safe and she managed like this for quite a while with carers whilst I was at work.

Mum can't walk at all now apart from five steps from bed to chair on a morning and then from chair to bed but I am completely holding her up. She now travels around the house being pushed in a wheelchair.

Sorry Kim I'm not painting a rosy picture am I.

I'm sure I remember you saying you work from home so that's a positive that your around to keep an eye on

her.

Take care

Lynda 💜

bazooka111 profile image
bazooka111 in reply to dollydott

Thank you Lynda for your insight. We do work from home, and are blessed to have someone home pretty much all the time, but it has been exhausting. Mom fell twice in two weeks; once trying to close the blinds in her room, and second when she was finishing up in the bathroom.

This week has been the most trying; noticeable change in her ability to walk any great distance. It’s disheartening. As much I know what is going to happen, it’s still overwhelming.

I am going to have to start looking for help ... I was hoping this was longer down the road —- I still have so many plans to share with my Momma this summer.

I appreciate all of you so much. This has been a tough month for me - I just recovered from sciatic nerve pain... next to childbirth ... the worst pain! Whew!

Blessings to all

Kim

Great Photo! Chocolate & Strawberries are two of my best friends.

My heart is with you & your momma as you both deal with this stage of life. It is so hard not worry all the time about safety & still get out & about & have some funny giggles & smiles. I admire you both! Sending Hugs... Granni B

bazooka111 profile image
bazooka111 in reply to

Thank you for your words ... still

Trying to provide the best quality of life for her. I keep saying to myself, “Let’s just take this one day at a time Kim” ... blessings

in reply to bazooka111

That's my motto!

enjoysalud profile image
enjoysalud

Hi, I was so happy to see a post by you....until I read it. I am so sorry.

Blessings and prayers...............

Los Angeles, CA, USA

bazooka111 profile image
bazooka111 in reply to enjoysalud

Same to you! I hope all Is well with you - it’s been a while since I’ve been on; caring for mom and managing sciatic nerve pain for almost a month! Happy to be back and reconnecting.

AJK2001 profile image
AJK2001

Sorry to hear of your Mum's progression. One thing to be wary of is whether your Mum comprehends the risk she maybe at. Mum still doesn't grasp the risk she faces if she tries to mobilise on her own, it's just that she is no longer able to get out of her chair on her own, so the opportunity is not there. But when she could still get out of her chair and bed and whether she tried using a walker or not that we had the most falls and most trips to A&E. 3 visits in 10 days was our record. I had many tears at this point as it felt almost like she was taunting me by saying she was going to do something which I knew she wasn't capable of but to her it was feasible and as soon as my back was turned she was off. The only person who seemed to get through was one of her carers who sat and talked about it with her many times.

I don't mean to put a downer on you but if you are a little prepared for what may happen maybe it will be easier to cope with. I hadn't found this forum then and found it really hard. I know of one couple whose dog has learnt to recognise the signs that the husband is going to get up and goes and finds her mistress and that has stopped many a fall. They haven't trained him, he's just picked up on it himself. Amazing hey.

Don't give up the idea of making memories, they might take a bit more effort and maybe simpler but Mum and I have had some lovely moments just sitting in the sunshine, listening to the bird sing, feeling a breeze.

Skye04 profile image
Skye04

What a beautiful smile your mom has!!

bazooka111 profile image
bazooka111 in reply to Skye04

Thank you ... I cherish it every single day!

Marilyn_cbd12 profile image
Marilyn_cbd12

How discouraging for both of you , especially after the exhilaration of your recent adventures during the trip to Hilton Head. As others have said, this may be an inevitable progression, but I can't help but mention that 18 months ago, when my husband suddenly found that he couldn't walk more than a block without pain, his neurologist increased his Sinemet and that helped to the point where he could resume taking short walks. Not sure where your mother is on medication...

Marilyn

bazooka111 profile image
bazooka111 in reply to Marilyn_cbd12

I will look into this medication!!! We meet with our neurologist soon

easterncedar profile image
easterncedar

Dragging leg was my guy's first symptom. PT really helped. There's a program for Parkinson's patients called LSVT Big. If you can find a practitioner in your area, I recommend it. If not, look for videos online. We found the exercises fun to do together, and they did me no harm, that's for sure. But the therapist really helped with the leg dragging.

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