Doing good at times and then setbacks ugh!

[JubileeRanch]

Here we are a couple of weeks ago at my sister-in-laws birthday party.....Bob was doing so good as you can see....he has been battling PSP for at least 5 years from the first symptoms....I continue to stand on my faith and prayers....last week and so far this week he is not doing so well for what ever reason :(. I am really hoping to get past this set back...I love y’all on this website and am so grateful to have a place to turn when I feel alone in this!

[Dadshelper]

That is a very nice photo. A slight downturn could be an infection or just a step down in the progression. Talk to his doctor to fill the medical team in on your observations.

Ron

[Northstar1]

What a lovely photo x

Sorry to hear about the down turn too.

This site is so helpful xx love and hugs

[Hiking13]

Beautiful photo just hang on to the good times as it will help you get through the rough times. Thinking of you

Love Sarahxxx

[Hidden]

Lovely photo!

It deserves to be in a frame, to remind you of the good times when things get tough.

Big hugs

Sue xx

[Toomuchtoomuch]

So happy that you have more beautiful memories 🤗

[AliBee1]

What a lovely photo. We are going through a bad patch at present but I thought that you might appreciate a poem I wrote a few mobths ago. Love AliBee xx

The Lord’s help

Without the Lord’s help I couldn’t survive this peculiar life that I’m living.

I’d not have the strength to be patient, calm or forgiving.

I’d be unable to cope with exhaustion, when his nights become day

and when imaginary things, or places, come into play.

I need the Lord’s help when I know I’ll not cope if I stay

and must leave the room to get out of the way.

I need to pray for patience when his beaker’s ‘blocked up’,

as it’s ‘nothing to do with the way that he’s holding his cup’.

I’d not have the insight, when grunts replace words

that need to be dealt with and can’t go unheard,

as oft they’re because he’s thinking that something is ‘there’

that needs to be sorted with reassurance, and quiet loving care.

I’d not be able to cope with what he is feeling, and what he can see

as I’d not understand that he cannot discern the truth from TV.

No matter how weird what he’s facing can seem to me

I need to pray for the strength to not disagree,

as all that this does is increase his frustration.

I have to enter his world and seek revelation.

How could I do that without help from above,

from a power that supports me with infinite love?

[JubileeRanch in reply to AliBee1]

Thank you so much 😢 it’s hard but The Lord is good all the time💜

[Tippyleaf]

Lovely photo, always good to be creating new memories. Hope the current difficulties soon settle

Love Tippy xx

[bazooka111]

Praying tonight for you - I came upon this post and just reading - praying that You can feel the brush of angel wings lifting you up