Posts - PSP Association | HealthUnlocked

PSP Association

9,393 members • 11,420 posts

All posts for May 2019

Rapid Progression of CBD?

This is my first post, so I hope this isn't a tired worn-out subject. My husband, like so many, had a long delay in his CBD diagnosis, including two spinal...

This is my first post, so I hope this isn't a tired worn-out subject. My husban...

AllieBBird

•5 years ago

33 Replies

Residential or nursing home, uk

My mum was diagnosed with PSP about 6 years ago, she 65. She lives in Norfolk, England. My dad was really struggling, caring for her. She recently went into a...

My mum was diagnosed with PSP about 6 years ago, she 65. She lives in Norfolk, ...

Kbaker1

•5 years ago

8 Replies

Secretion related wheeze???

Hello all, my prayers are with all those who are suffering with CBD or PSP and with the families dealing with the devastation of the illnesses and for those...

Hello all, my prayers are with all those who are suffering with CBD or PSP and w...

Sapphire1001

•5 years ago

1 Reply

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3X mom was misdiagnosed. Anyone else have a similar experience?

After fumbling around for a diagnosis for over a year, I stumbled upon the attached article and discovered what was really happening to my mom....

After fumbling around for a diagnosis for over a year, I stumbled upon the attac...

kburgess

•5 years ago

7 Replies

My Dad diganose with psp back in 2015 he is unable to speak now and sleeps alot

We came to know in year 2015 my father had psp. He had sugurgies of both of his legs after 2nd surgery I think his disease Incrase a lot now he is not able to...

We came to know in year 2015 my father had psp. He had sugurgies of both of his ...

Mohsin_ibrar

•5 years ago

5 Replies

CHC petition

There is a petition that needs signing re CHC funding. If you go to //petition.parliament.uk/petition/238047 you will be able to take part

There is a petition that needs signing re CHC funding. If you go to //petition.p...

Dickenson2

•5 years ago

7 Replies

Agitated sleep

Hi everyone, I need ideas/advice to cope with my husband’s agitated sleep. He clasps and unclasps his hand and rubs constantly and rocks the boat which wakes...

Hi everyone, I need ideas/advice to cope with my husband’s agitated sleep. He cl...

Caro2132

•5 years ago

7 Replies

Farewell to my amazing husband

Geoff passed away yesterday afternoon. His passing was a blessing and it was an honor and privilege to have been by his side during and at his time of death....

Geoff passed away yesterday afternoon. His passing was a blessing and it was an...

D0ttieL0ttie

•5 years ago

43 Replies

My husbands battle

Hello. My name is Jayne and my husband is Craig, last year Feb 2018 at the age of 57 he was diagnosed with PSP. I knew something was wrong several months...

Hello. My name is Jayne and my husband is Craig, last year Feb 2018 at the age o...

Unicorn2022

•5 years ago

36 Replies

Sore dry eyes

Yes my husband, suffered terrible withhis eyes constantly rubbing , the ophthalmologists gave hi lo drops, didnt seem to do much good. I would feel so sorry...

Yes my husband, suffered terrible withhis eyes constantly rubbing , the ophthalm...

Trillo

•5 years ago

5 Replies

When OCD and PSP collide.

Larry’s ever so slow decline continues. This morning he got me up at 1. I had just been up for the bathroom. Going in he had a urinal in his hand with urine in...

Larry’s ever so slow decline continues. This morning he got me up at 1. I had ju...

Hidden

•5 years ago

35 Replies

Baclofen - too strong?

Hi. My dad has been prescribed 10mg baclofen twice a day but finds that he has no muscle control and we find moving him around extremely difficult. Is there...

Hi. My dad has been prescribed 10mg baclofen twice a day but finds that he has ...

Inarticulate

•5 years ago

2 Replies

Constant moaning

Hi can someone help with these nagging moans I make daily. They mostly come when I’m over thinking and in public. These noises I make are very embarrassing and...

Hi can someone help with these nagging moans I make daily. They mostly come when...

James888

•5 years ago

3 Replies

May is PSP Awareness Month

For FB users.: May is PSP Awareness Month -Progressive Supra Nuclear Palsy PSP is a neurodegenerative disease with no treatment-cure. It is part of a family...

For FB users.: May is PSP Awareness Month -Progressive Supra Nuclear Palsy PS...

daddyt

•5 years ago

2 Replies

Teeth Clinching

My husband (PSP) bites down on the toothbrush when we are trying to brush his teeth making it very difficult to get this done. At times, it's hard to get him...

My husband (PSP) bites down on the toothbrush when we are trying to brush his te...

teresa1988

•5 years ago

19 Replies

12 months on

It has been 12 months on 17th May, 2019 that my beloved TJ passed away. I thought things would get better but they don't seem to be. I often listen to the...

It has been 12 months on 17th May, 2019 that my beloved TJ passed away. I tho...

Caz49

•5 years ago

16 Replies

Eyes

Hello all, I hope everyone is doing as well as possible. Dads completely immobile now and lost so much weight. Choking, crying all the time. It’s horrendous....

Hello all, I hope everyone is doing as well as possible. Dads completely immobi...

daddysgirl1916

•5 years ago

11 Replies

A "Does he take sugar?" moment!

Sorry...just needing to rant! Do you all understand the frustration of people ignoring your loved one because they are disabled in some way? I know people want...

Sorry...just needing to rant! Do you all understand the frustration of people ig...

JCRy

•5 years ago

27 Replies

May Is PSP Awareness Month

For those on FB Never mind Waldo, where in the world is Harley? May Is PSP Awareness Month (Progressive Supranuclear Palsy). PSP is a neurodegenerative...

For those on FB Never mind Waldo, where in the world is Harley? May Is PSP Awa...

daddyt

•5 years ago

31 Replies

What a week!

Well, actually a couple of weeks. Chris has decided he is able to do things ha hasn't done for months. So when Waitrose rang the door in Good Friday, he...

Well, actually a couple of weeks. Chris has decided he is able to do things ha ...

AnneandChris

•5 years ago

21 Replies

🙏🕊💐🌟🌷💫🌈🎼🕯❤️💙💜 Thinking of Enjoysalud on a Hard Anniversary 🌺

Love and hugs from your friends, Margarita ☀️ Anne G.

raincitygirl

•5 years ago

9 Replies

Headaches

Hi, mum has cbd and suffers headaches every now and then and we notice this causes a small decline and change of moods and emotions, anyone else have this...

Hi, mum has cbd and suffers headaches every now and then and we notice this caus...

Codd_family

•5 years ago

4 Replies

Finding a post

How do I locate Posts by a particular person? Thank u

Boyce3600

•5 years ago

2 Replies

I'm still writing...

After losing my dad just over a year ago I haven't come on here. I know others stay tuned after a death but I just couldn't. I will say though, especially to...

After losing my dad just over a year ago I haven't come on here. I know others s...

Hidden

•5 years ago

11 Replies

Feeling a little bit lost...

Hi all. I'm so relieved to find this place, because at the minute I'm trying to help our family through a new diagnosis of PSP. After 18 months of testing her...

Hi all. I'm so relieved to find this place, because at the minute I'm trying to ...

theysingular

•5 years ago

9 Replies

New Member Looking for Help with Continuing Healthcare Plan Process

Hi there - my wife was diagnosed with PSP last December after six years of the healthcare profession being unable to work out what was wrong with her. Since...

Hi there - my wife was diagnosed with PSP last December after six years of the h...

Welshrugby

•5 years ago

14 Replies

Behaviors

I was wondering if others have had similar experiences. My husband (2 years since PSP diagnosis) now lives in a Board and Care. Needless to say, he wants to be...

I was wondering if others have had similar experiences. My husband (2 years sinc...

bsilverman

•5 years ago

7 Replies

If dad gets another infection the hospital won’t treat him

I have question today we met dads consult and he’s in hospital at the moment he had kidney infection. Been there for 4 weeks. We asked about getting my dad a...

I have question today we met dads consult and he’s in hospital at the moment he ...

Cazzy26

•5 years ago

5 Replies

So I have moved.....

It has been a very busy last couple months. I've sold my home and bought another near the Big Horn Mtn range in the state of Wyoming. I guess my inner cowboy...

It has been a very busy last couple months. I've sold my home and bought anothe...

Dadshelper

•5 years ago

12 Replies

Impact of family death on PSP

Hi My dad who lives with us, has been diagnosed with PSP last Nov (confirmed) and we have been providing care within the family for last 2-3 years since his...

Hi My dad who lives with us, has been diagnosed with PSP last Nov (confirmed) ...

Inarticulate

•5 years ago

18 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for May 2019

Rapid Progression of CBD?

Residential or nursing home, uk

Secretion related wheeze???

3X mom was misdiagnosed. Anyone else have a similar experience?

My Dad diganose with psp back in 2015 he is unable to speak now and sleeps alot

CHC petition

Agitated sleep

Farewell to my amazing husband

My husbands battle

Sore dry eyes

When OCD and PSP collide.

Baclofen - too strong?

Constant moaning

May is PSP Awareness Month

Teeth Clinching

12 months on

Eyes

A "Does he take sugar?" moment!

May Is PSP Awareness Month

What a week!

🙏🕊💐🌟🌷💫🌈🎼🕯❤️💙💜 Thinking of Enjoysalud on a Hard Anniversary 🌺

Headaches

Finding a post

I'm still writing...

Feeling a little bit lost...

New Member Looking for Help with Continuing Healthcare Plan Process

Behaviors

If dad gets another infection the hospital won’t treat him

So I have moved.....

Impact of family death on PSP

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive