A change of scene

[Willow_rob]

To everyone who responded to my last post, I thank you. I decided to no longer wallow in self pity but to take some action and Mary and I are staying with our son and family. Our granddaughter is performing in the Watchwinder's tale as the youngest member of the cast and we wanted to see her perform. I was worried about subjecting Mary to nearly 4 hours in the car however I realised she spends that much time every day in the wheelchair so why not in the wheelchair accessible vehicle? Our son organised a downstairs bed I bought a foldable commode. I wash and dress her, part on the bed and part on the chair. So we're sorted. Again thanks for your support.

[dollydott]

Glad your feeling better.

Have a great time with your family. Lynda 😊

[Hidden]

I would guess she enjoyed getting out of the house immensely.

[Satt2015]

Well done willow Rob! X

[Heady]

Well Done! That's this weekend sorted, but what next week? You need more help, make sure you ask for it when you get home, whilst you are still feeling relaxed.

Enjoy being with your family.

Lots of love

Anne

[doglington]

Well done.

X

[Willow_rob]

Update on my away weekend. It was vary hard work but worth it. Mary sat through the whole performance of our The Clockwinder's Tale and loved it. The downside was she wouldn't go to sleep when we got her home and stayed up late giggling to the (often toilet) humour that grandchildren have. The bonus was that our granddaughter was a star and her performance, and that of the cast) was perfect (through our rose tinted glasses).😁

[WelshRugbyDaughter in reply to Willow_rob]

Very happy to hear that you've all enjoyed the weekend. Through the highs and lows I'm a strong believer that the more normality and humour we can inject into day to day life, the better. Keep at it xxx

[Brenive]

Willow rob.. the best way to see life is through rose tinted glasses , with PSP. lurking in every corner , enjoy life when you chance, ..Brenda xxx

[Brenive]

Sorry, should have put enjoy life when you can...Brenda xxx

[AJK2001]

So glad you were able to make it and both enjoy seeing your star granddaughter .

Keep up the positive and sort some regular down time for yourself.

[Hiking13]

So pleased to read this - keep making those happy memories and take care of yourself

Sarahxx

[ncgardener799]

Sounds like you had a wonderful outing!!! Enjoy all you can-family , friends and each other .

[Dickwin]

Hang in there my friend. You are doing right by your wife. I am guessing that I am about 500 days behind you in this process and it scares the hell out of me. I know I will have periods like yours. I have already had a few. But then I have good days too and the support of the kind folks here and in my family and that helps so much. We persevere. What choice do we have.

Warm regards

Dick

[Willow_rob in reply to Dickwin]

Thanks Dick, you cannot assume anything because the onset of this terrible disease is totally unpredictable. Live for the now. I thought we had time but she declined so rapidly to a low plateau that we lost do many opportunities. Thanks for your suppor.