New to PSP or CBD ?

[NanBabs]

If you are new to PSP/CBD or are awaiting a diagnosis, can I remind you to perhaps investigate the possibility of NPH ?

Normal Pressure Hydrocephalus (NPH) can have very similar symptoms to both PSP or CBD and, unlike them, NPH can be treatable. I personally know of someone who had very similar symptoms to my late husband (he had PSP) but was eventually diagnosed with NPH - he had treatment and recovered almost overnight. I took my husband to see a neuro-surgeon but sadly he was unable to help and soon after that PSP was confirmed.

I don`t want to give anyone false hopes, but at least try to rule out NPH before accepting PSP.

X

[enjoysalud]

Good suggestion!

[SewBears]

Thank you for this. I’m guessing this would be detected with a CT scan or an MRI? We’ve had both. Stroke was ruled out and I don’t think that NPH was discussed. I can ask about it at our next appointment but I have a feeling this would already have been ruled out.

Thank you

[NanBabs in reply to SewBears]

I am not sure, but as I understand it, scans could help with diagnosis but the NPH procedure involves drawing fluid from the spine, which in turn drains excess fluid from the brain, thereby relieving symptoms.

It`s always worth investigating - just in case you are the one it helps. I know I was desperate to find out what was wrong with P and, more importantly, if I could help or find a remedy.

x

[SewBears in reply to NanBabs]

Thank you. I will definitely add this to my list of questions for our next visit.

[journeyofjoy in reply to SewBears]

My husband has NPH in addition to what is probably PSP. NPH is under-diagnosed and is treatable. Worth looking into. NanBabs is correct. They will diagnosis using MRI and also by drawing fluid from the spine. As in many brain diseases, they can't always get a 100% diagnosis. With my husband, it wasn't a 100% diagnosis but he had the brain shunt surgery anyway and it relieved NPH symptoms. Best of luck to you.

[Kevin_1]

Nice one

[NanBabs in reply to Kevin_1]

Thanks Kevin,

I would love to be able to help to save someone from going through what we all do with PSP.

I hope you and Liz are still battling on and keeping your spirits up.

x

[rriddle]

NPH should be obvious on a brain MRI.