Excessive Salvia : Hi has anyone had... - PSP Association

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Excessive Salvia

12131973 profile image
11 Replies

Hi has anyone had experience of using 1% atropine eye drops for excessive saliva? Doc is suggesting Hyocine patches but I think the side effects maybe worse than the drooling. My dad has only recently been diagnosed so any advice would be welcomed. Thank you

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12131973
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11 Replies
Marie_14 profile image
Marie_14

Has your Dad started drooling or are you trying to be prepared for when it happens?

My husband had the patches. He had no side effects and they worked really well until a couple of weeks before he died.

Hope that helps?

Marie x

12131973 profile image
12131973 in reply toMarie_14

It is already happening, thanks for your advice x

honjen43 profile image
honjen43

Hi and welcome!

I remember there are a number of past postings on excessive saliva and the use of atropine and other drugs. It is a common affliction PSP sufferers have to deal with. I just used the search function at the top of the page and put in 'atropine'.

It brought up one relevant post and several options.

Yes, someone has used atropine drops and there may be other threads too.

Another suggestion was to take cider vinegar daily and that this reduces saliva. I did not get dosage.

A further suggestion was to use mucinex which was also helpful.

Some have used hyacine patches with few side effects. It is probably a case of try it and see.

Someone else suggested botox in the mouth could reduce the production of saliva.

I have personally not needed to use any of these while on my journey with my husband and CBD. However, if i were faced with this, i would be inclined to start with cider vinegar! It doesn't taste great, but it is not a drug!! So perhaps try more research on this.

It's a horrid affliction, to have constantly wet face and wet clothing. I hope you find a satisfactory solution that reduces the problem, andcthe embarrassment.

There are also some very good quality large coveralls (bibs!) available on Amazon (I think) which keep the patient dry.

Hugs

Jen xxx

12131973 profile image
12131973 in reply tohonjen43

Thank you xx

My husband takes glycopýrrolate and had pretty good results for a couple of years,but he is getting worse and is going into his 10th year. We try scopolamine patch and he had a bad reaction from them,major hallucinations.

Dee in BC

12131973 profile image
12131973

Thank you xx

allotmentartist profile image
allotmentartist

My husband was on the patches but he was pulling them off after half an hour saying they made they made him itch they workedgeree when he left them on though, he is now on atropine drops with no problems seem to be working fine, I read about them on here mick was diagnosed in 2016.

AnneandChris profile image
AnneandChris

Hello there

We use one drop of Atropine night and morning. However, recently the saliver production has increased but recent botox injections into both muscles has vastly improved the situation.

Hope this helps, keep on keeping on!

AJK2001 profile image
AJK2001

I also know someone who finds botox injections in the salivary glands works well, it's not something I had heard of until recently. Not sure how many places do this or how you get referred.

Sawa profile image
Sawa

Hi, hubby used Atropine drops for a couple of years and they seemed to help. One watch out is that early on, when he was still relatively mobile, he self-medicated with Atropine and overdosed. Had a bit of a scary few hours with him hallucinating and being a bit 'out of it'. But it passed in a few hours with no other effects.

We also got him one of those retractable keyring things, clipped it to his belt or collar and attached a small towel to it. So we always had something close at hand to help wipe up the drool, when it got a bit excessive sometimes.

Good luck!

rriddle profile image
rriddle

You can try the atropine drops. Atropine is also anticholinergic, like the patches.

The only treatment that isn't anticholinergic is botox.

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