Motion Disorder Specialist

[bazooka111]

Has anyone here met with a Motion Disorder Specialist? Was it beneficial?

[Hidden]

The only benefit was getting a correct diagnosis for Larry. He had spent a year and a half going through tests with another neurological who was clueless.

[SewBears]

Hi, I’m not sure if a Motion or Motor Specialist is the same thing or not? We saw a Motor Specialist who looked at hubby’s DAT scan and ruled out Parkinson’s. He spent less than 15 minutes with us. He told us that Parkinson’s drugs wouldn’t work. He was wrong. Dopamine is working but there was a long delay to try it out because of the Motor Specialist. Maybe you’ll have better luck?

[Hidden in reply to SewBears]

Larry had asked the first neurologist for dopamine to see if it would do anything. She wouldn’t give it to him. Ultimately when he did finally get from the second neurologist it didn’t work.

[SewBears in reply to Hidden]

I’m sorry that it didn’t work for Larry. I’m also sorry that you were delayed in trying it out just to see if it would help or not. It’s difficult to be heard sometimes. Sigh...

[Hidden in reply to SewBears]

Having lived through medical error in my own life I knew when to take the case out of the first neurologist’s hands and try someone else. The first neurologist was shocked I was doing it. Doctors are only human and prone to error. Most of them are unaware of that.

[aliciamq in reply to SewBears]

We went to the "Mobility Clinic" in the neuro dept. USA . Why Drs can't just say - I don't know ~ Let's try it --- simple enough😑

[Inparadise]

My husband was referred by his neurologist, Dr, Hawkins (who dx’d him with PSP), to Dr. Irene Litvan. Dr Litvan is the director of the Motion Disorder Clinic at UCSD. She confirmed the diagnosis and made many helpful recommendations in dealing with the symptoms. I am grateful for both dr. Hawkins and dr. Litvan.

[AJK2001]

I'm not sure about a motion disorder specialist, though I know of one person who has been to one and they spoke well of the clinic, I'm not sure what they got out of it other than being listened to. However I know of several people who have been to physiotherapists specialising in neurological conditions and they have all stated that they were good and got people walking again for a period of time. Unfortunately as is the nature of a "progressive" disease, it doesn't last forever.