Posts - PSP Association | HealthUnlocked

PSP Association

9,399 members • 11,426 posts

All posts for February 2019

"Treating PSP, CBD, and MSA - What can be done?" Webinar, Wed. Feb. 27th, 3pm PT (US) - Register Now

Stanford University and Brain Support Network will be co-hosting another free, one-hour webinar this month on progressive supranuclear palsy, corticobasal...

Stanford University and Brain Support Network will be co-hosting another free, o...

rriddle

•5 years ago

5 Replies

Is anyone familiar with blackouts or seizures?

I feel so very guilty for only writing when I need your help. Time is never your own. The days and demands fly by and before you know it months go by. John's...

I feel so very guilty for only writing when I need your help. Time is never you...

Abrecheisen53

•5 years ago

17 Replies

Spring once more

A pale blue sky , showers , wind and yet the signs of spring are all around in Devon. The banks are awash with snow drops , wild daffodils toss and sway in...

A pale blue sky , showers , wind and yet the signs of spring are all around in...

Georgepa

•5 years ago

17 Replies

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All smiles ...

This is what I love the most ... her smile! I took her out to see a movie today, and we used our brand new rollater that easily turns into a wheelchair!!...

This is what I love the most ... her smile! I took her out to see a movie today,...

bazooka111

•5 years ago

11 Replies

Reading Out Loud

I encourage my Mom to read out loud. She really loves it, so we work on volume, enunciation and slowing down - she tends to read really fast! Today was a...

I encourage my Mom to read out loud. She really loves it, so we work on volume, ...

bazooka111

•5 years ago

8 Replies

CBD? Diabetic neuropathy - New Symptom

So one of the first signs of something wasn’t right was moms handwriting and her index finger sticks straight out. The Last couple of nights she has had...

So one of the first signs of something wasn’t right was moms handwriting and he...

bazooka111

•5 years ago

7 Replies

obsessive and verbally agressive

Hi,I am a newbie who is looking for help in dealing with my wife's symptoms .I struggle with her obsessive habits especially in regard to her medication...

Hi,I am a newbie who is looking for help in dealing with my wife's symptoms .I s...

acorneater

•5 years ago

40 Replies

How to online Party - from the wonderful lady herself!

There are no rules, but here is anold party. https://healthunlocked.com/psp/posts/132560932/the-party-has-started Cut and paste any Icons you need from here:...

There are no rules, but here is anold party. https://healthunlocked.com/psp/post...

Kevin_1

•5 years ago

15 Replies

CBD

Hello My husband was diagnosed last year he us 55.

Northstar1

•5 years ago

30 Replies

Consultant? or GP care?

Hi, After my mum's diagnosis in hospital back in November she was sent home and given just her usual medication for osteoarthritis etc. However she only has...

Hi, After my mum's diagnosis in hospital back in November she was sent home and...

VivienandMe

•5 years ago

11 Replies

Aspiration pneumonia

Hi Can anyone tell me what I’m liking for if I suspect pneumonia. Colin is coughing a lot, his voice is husky and cannot day many words without trying to take...

Hi Can anyone tell me what I’m liking for if I suspect pneumonia. Colin is cough...

Helen119

•5 years ago

16 Replies

I discovered this on my mobile this morning

I was just browsing on my mobile and felt this is so true. Today is a bad one but I know I will get through it. As we all do on here. Boy it is so tough. PSP...

I was just browsing on my mobile and felt this is so true. Today is a bad one bu...

Baileyboo

•5 years ago

48 Replies

Birthday Party for Jillanf

I'm making a new thread for this. Hope that's OK GrannieB "Mottsie 5 hours ago Good Morning Kevin, I believe Jillann has an upcoming birthday on...

I'm making a new thread for this. Hope that's OK GrannieB "Mottsie 5 hours ago ...

Kevin_1

•5 years ago

28 Replies

James Moffat's latest book

Hi all. I put a post about forum member James Moffat latest book. James has let me know that book proceeds go to PSPA. Go James go! Tim

Hi all. I put a post about forum member James Moffat latest book. James has let ...

daddyt

•5 years ago

1 Reply

Amantadine 100mg

I'm new here. Any good results taking this drug. They want to increase to second dose after 2 weeks

I'm new here. Any good results taking this drug. They want to increase to second...

Rhinoree

•5 years ago

14 Replies

Chc

Thank you all for your support after my post. The frustrating thing is that I have kept full records of most things. Falls, infections, double incontinence...

Thank you all for your support after my post. The frustrating thing is that I ha...

maggie4

•5 years ago

4 Replies

Posting for the Forum's James Moffat

James has asked me to add his book to an earlier post of mine with the books - The PSP Chronicles and You, Me & PSP. Space restrictions would not accommodate...

James has asked me to add his book to an earlier post of mine with the books - T...

daddyt

•5 years ago

2 Replies

Book excerpt; Keep On Keeping On - The PSP Chronicles Volume 2

Expect a planned book launch sometime this summer 2019. Zootopia was an animated movie by Disney featuring all animal characters, more of a family film,...

Expect a planned book launch sometime this summer 2019. Zootopia was an anima...

daddyt

•5 years ago

13 Replies

CHC, evidence and appeals + what to do when the CHC won't reply.

I am so angry that one of our number was turned down because of lack of evidence. That CHC is applying a professional level of evidence to a carer....

I am so angry that one of our number was turned down because of lack of evidence...

Kevin_1

•5 years ago

18 Replies

CHCRears it’s ugly head again

Just had chc review. Prepared as advised, did lots of research but surprise surprise Pete is no longer considered eligible. Not because of the way his...

Just had chc review. Prepared as advised, did lots of research but surprise surp...

maggie4

•5 years ago

11 Replies

MEETING UP!

Hi Guys, sorry this is mainly for UK peeps. We have just had a group meeting, kindly arranged by Satt, Amanda in the UK and a couple across the pond also got...

Hi Guys, sorry this is mainly for UK peeps. We have just had a group meeting, ki...

Heady

•5 years ago

14 Replies

Result of thinking about CHC funding assessment

Made me sad AliBee so wrote this: My Man Where is the lovely man that I married, who shared my life and who’s love I’ve cherished? Where is the man who would...

Made me sad AliBee so wrote this: My Man Where is the lovely man that I married,...

AliBee1

•5 years ago

24 Replies

@jillannf6

jillannf6 Brilliant to see you are around!!! Liz will be so pleased when I tell her too!!! Always remebered in our house for your forum parties and for the...

jillannf6 Brilliant to see you are around!!! Liz will be so pleased when I tell...

Kevin_1

•5 years ago

14 Replies

Sunrise is beautiful today

My husband slept a little better the Dr gave him something for restless leg syndrome which has helped some. Yesterday was a bad day for him he seemed...

My husband slept a little better the Dr gave him something for restless leg syn...

JubileeRanch

•5 years ago

10 Replies

Hard Decision

Just had to make the hardest decision of my life. We had a visit from Mary's consultant to discuss her treatment escalation plan and she asked whether Mary...

Just had to make the hardest decision of my life. We had a visit from Mary's con...

Willow_rob

•5 years ago

43 Replies

NHS Continuing Healthcare Decision Support Tool tips And Checklist tips.

Hi folks There appear to be quite a few folk making applications for CHC, or facing reviews. Checklist Stage The first stage of gaining Continuing...

Hi folks There appear to be quite a few folk making applications for CHC, or fa...

Kevin_1

•5 years ago

17 Replies

New to Forum

Alex my husband is my carer, Alex is writing this on my behalf. I was diagnosed with CBD in August 2018. Prior to being diagnosed I felt something was wrong...

Alex my husband is my carer, Alex is writing this on my behalf. I was diagnose...

Amth_1948

•5 years ago

18 Replies

Germs in Your Gut Are Talking to Your Brain. Scientists Want to Know What They’re Saying.

Very interersting article in the NYT! https://www.nytimes.com/2019/01/28/health/microbiome-brain-behavior-dementia.html Germs in Your Gut Are Talking to Your...

Very interersting article in the NYT! https://www.nytimes.com/2019/01/28/health/...

loustalet

•5 years ago

3 Replies

Small USA meeting

It turns out that Mottsie, Granni B, and I live very close to each other. We were thinking of meeting the same time as the Brass Monkey gathering but neither...

It turns out that Mottsie, Granni B, and I live very close to each other. We we...

Dadshelper

•5 years ago

53 Replies

travel claim

Disgusted with Axia I pay a broker I thought to handle the claim passed on to Axia hardly ever there and dont get back to u. I have wasted time trying to sort...

Disgusted with Axia I pay a broker I thought to handle the claim passed on to Ax...

Gelina

•5 years ago

2 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for February 2019

"Treating PSP, CBD, and MSA - What can be done?" Webinar, Wed. Feb. 27th, 3pm PT (US) - Register Now

Is anyone familiar with blackouts or seizures?

Spring once more

All smiles ...

Reading Out Loud

CBD? Diabetic neuropathy - New Symptom

obsessive and verbally agressive

How to online Party - from the wonderful lady herself!

CBD

Consultant? or GP care?

Aspiration pneumonia

I discovered this on my mobile this morning

Birthday Party for Jillanf

James Moffat's latest book

Amantadine 100mg

Chc

Posting for the Forum's James Moffat

Book excerpt; Keep On Keeping On - The PSP Chronicles Volume 2

CHC, evidence and appeals + what to do when the CHC won't reply.

CHCRears it’s ugly head again

MEETING UP!

Result of thinking about CHC funding assessment

@jillannf6

Sunrise is beautiful today

Hard Decision

NHS Continuing Healthcare Decision Support Tool tips And Checklist tips.

New to Forum

Germs in Your Gut Are Talking to Your Brain. Scientists Want to Know What They’re Saying.

Small USA meeting

travel claim

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive