Made me sad AliBee so wrote this:
My Man
Where is the lovely man that I married,
who shared my life and who’s love I’ve cherished?
Where is the man who would hold me tight
and snuggle beside me throughout the night?
This lovely man no longer knows how to cuddle
so when I give him a hug it results in a muddle.
Where is the man who could take control?
who would shop and cook and have a DIY role,
who built walls and cupboards and did the electrics too,
who can now look at a knife and not know what to do.
Where is my man who wonderful poems would write,
who can’t even now get his signature right?
Where is my man who with the Shakespeare Morris men danced
who cannot now stand unaided and quickly falls if given the chance?
Where is my man who would win every quiz
but now has no concept of time or of where he is?
Where is my man who could easily manage his own medication
but now grits his teeth or spits it back out without hesitation?
Where is the man who could down a pint in almost one go
but now can choke on his drink no matter how slow?
Where is my man who used to enjoy a rare steak
but now needs reminding a spoonful to take?
Where is my man who would sing whilst doing the cooking
but now only grunts as he stares into space without really looking?
Where is my man who was always showed interest in what I’d been doing
who now needs to know where I am for in my absence his angst is brewing?
Where is my darling whose eyes would twinkle along with a wicked grin?
Which can still now happen and make me aware that he is still within.
Advice needed for forthcoming CHC Assessment
CBC vs PSP
Fast Track CHC/End of Life Care
