How we can all relate to that AliBee1 but every line I read I was thinking of what you put in the last line and I’m so pleased you put it as it is so easy to forget that the men/women we remember are still there. Still there wishing they can do all the things they used to be able to. Feeling frustrated and sad that they can’t. But they can still love, right up to the end. They still love hugs and cuddles they can’t return, still love kisses and can’t help if they a dribbly, still like hearing us speak to them as we did when things were better, being reminded of funny incidents that happened and beautiful moments like wedding days, births of children, grandchildren, favourite pets and responding with thumbs up & down or hand squeezes.
I have many happy moments of special happenings during the nightmare of PSP when we could still connect emotionally and physically until 48 hours before he heart finally stopped.
Sending you a big hug AliBee, please pass it on to your man.
But I'm glad to also reinforce the fact that he is still in there.
Chris could enjoy jokes with the family until the last few days. At the hospice they were delighted when he would suddenly come up with the answer in a quiz. He relished being included in family games.
It's tragic to reflect on what has been lost but also cherish the fleeting moments. It was really important to Chris that he heard I loved him and I knew he loved me.
I lost my son, so entirely different relating and yet 90% rings true. I remember the first indication that his mind was not as strong. He had a complicated set up for his TV, Bose speakers, Blue-ray, and recorder. I needed to get to a particular channel and asked if he would please get it for me. He struggled and struggled and then, "Mom, I can't. I don't remember."
Only one intimately familiar with Prime of Life Brain Diseases understands.
Thankyou for reminding us all that somewhere hiding in there is the person that we know/knew and love/loved. Ben often showed glimpses of the 'real' him, a wry kind of smile, a glint in those far away eyes. Oh how I miss that man, not a that he was perfect ( or me for that matter) but I miss the real him all the same, I don't miss the PSP man that he became and it was a blessing for him to be free of the disease that took everything from him. Sending love to all of the sufferers, carers and those who have lost their loved ones.
Hi AliBee your poem is so beautiful and I can relate to so much of it. I haven't responded to posts in a long time although I do read them all. I just had to answer you for your poem just says it all. Thank you. Lady Alone
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