Rare Disease Day: February 28, 2019 is Rare... - PSP Association

PSP Association

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Rare Disease Day

daddyt profile image
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February 28, 2019 is Rare Disease Day. PSP, CBD, MSA and MN disease are but a few of the 6000 rare diseases.

Tim

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Marie_14 profile image
Marie_14

Tim many thanks for that reminder. It puts things into context when you say there are 6000 rare diseases. A worrying thought?

How are you doing? Are you still writing your next book? Have you had any ice cream recently? Soon it will be spring? Here it is summer!! It has been very warm here. However by the weekend we will be back to cold weather. All very odd! My flowers and shrubs are mixed up and so are the birds!

Take care of yourself and tell us what you are doing.

Marie x x

daddyt profile image
daddyt in reply toMarie_14

Hi Marie - Yes, still writing the next volume titled Keep On Keeping On The PSP Chronicles Volume 2. Still enjoying my ice cream. In fact, there is a video ( me with ice cream) with my post but I couldn't upload it to this site - had to opt for a picture instead.

Tim xx

Marie_14 profile image
Marie_14 in reply todaddyt

Just as well Tim! Lol. Do we want to see you devouring your ice cream? You make us all jealous!

Glad you are still writing your book. How is Trish? I hope she is well. Are you in your man cave yet or is it still too cold for that?

It is so nice to hear from you again. Hugs and love to you and Trish.

Marie x x

daddyt profile image
daddyt in reply toMarie_14

Mancave aka cottage -yes. Too much snow and cold to be out in the sanctuary. Trish is good - thanks for asking.

Tim xx

Katiebow profile image
Katiebow

I took five more notes out to remember Ben and wishing well to all who are sufferers of rare diseases. All good wishes to you Tim and thanks for reminding us of the day. xx

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