PSP-P Diagnosis

[YoungPSP]

Has anyone been diagnosed as non classic PSP? My neurologist has diagnosed my father with PSP-P, I am trying to distinguish the difference.

Thanks

[Tippyleaf]

Hi my hubby diagnosed with PSP in 2013 had a relatively slow progression and the Neurologist refered to this as an atypical PSP. Speeding up a little now though😖

Apparently the neurologist told me there are some differences in racial groups he suggested generally in Asian patients he sees a slower disease progression. Cannot find any research to back up this suggestion though!!

Love Tippy

[NannaB]

brainsupportnetwork.org gives the differences. One is that falls and cognitive decline occurs later in PSP-P which may explain a longer survival rate of an average of 9 years as opposed to 5-7 with PSP. Several folk on this site in the past have said they have been told they have a “slower” PSP. Perhaps this is what they meant. They were certainly able to communicate on here a long time after my husband, diagnosed at a similar time, was able to.

I do hope you have lots of time to make happy memories and your dad gets to do things he has always wanted to.

Best wishes.

XxxX

[Dadshelper]

Welcome to the site! If you do some searching of back posts I believe you'll find a few on PSP-P and PSP-R. That may help understand the difference. Letting us know what part of the world you're in will help tailor answers for you. Try this link to an old post...

healthunlocked.com/psp/post...

Ron

[rriddle]

We have a lot of articles on our website about the various types of PSP. Here's one:

brainsupportnetwork.org/fiv...

You can do a search on the site on the term "PSP-parkinsonism" and you will see a lot of blog posts.

[daddyt]

I am diagnosed with PSP-P variant. For me, it has meant a slower form of progression which allow has allowed me to advocate for and raise PSP awareness. Make the most of this "time", the full ugliness of PSP will catch up - make no mistake about it.

Tim

[LuisRodicioRodicio]

Hi YoungPSP!

I am not a phisicyan. My studies have a relationship with Physics, Chemistry and the Environment.

There are different types of PSP.

The new criteria recognize the various phenotypes of PSP. They are PSP-Richardson syndrome (about 55% of all PSP), PSP-parkinsonism (30%), PSP-frontal dementia (5%), PSP-ocular motor (1%), PSP- pure akinesia with gait freezing (1%), PSP-corticobasal syndrome (1%), PSP-progressive non-fluent aphasia (1%), and PSP-cerebellar (<1%). The remaining few percent are combinations of these or still-unrecognized forms.

I have made an excel table (xlsx) with diferent types of PSP, symptoms and differences between them.

The information I can send you by email is a compilation of scientific papers. If you are interested, please, send me an email address by internal HealthUnlocked mail.

The information is made with good will and my best technical criteria that I have been able to contribute, thinking above all in guiding caregivers who have exception made of PSP associations chats and support to face this unknown disease.

Hug and luck.

Luis

[PSPPsP in reply to LuisRodicioRodicio]

Please send to [e-mail]

Thanks. Linda Sheppard

[salem16]

Let me know and share if u find out.