Quick question : Hi everyone,I'm writing as... - PSP Association

PSP Association

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Quick question

JoJoB88 profile image
7 Replies

Hi everyone,I'm writing as my boyfriends dad has PSP. He was diagnosed more than 4 years ago. I see him every Sunday and I can see his deterioration. We know he is getting very bad and it breaks my heart for his family. His eyesight is going bad and he is now in pure liquid diet. I love him so much and my heart breaks. It breaks more seeing his family going through this. I'm looking for ideas of gifts I can get for him. Any ideas are appreciated. I just want to show my love and show him and his family how much I care . Thanks in advance.

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JoJoB88 profile image
JoJoB88
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7 Replies
NannaB profile image
NannaB

I bought my husband VERY LARGE canvas prints of our family. One of our sons on their own and one with all the family. They were put up opposite his chair, low enough down for him to see. Other gifts over the years were things he could do with his hands. He had one of those long plastic puzzles where you can twist each piece and make different shapes. He had a ball that would flash if he squeezed it, a smooth carved wooden heart he loved to hold, audio books, an enormous wall clock, soft fleece for his knees.

Hope this helps.

XxxX

JA10 profile image
JA10

Hi,

If there is someone there to assist with starting/changing discs or any sort of MP3 device, music or audio books.

We have given these to my mum as she struggles to read thanks to PSP!

The only problem she has with them is, my Dad as her carer, often watches the tv and doesn't think to start the disc player.

Julie

Kevin_1 profile image
Kevin_1

Hi JoJoB88

Welcome to the forum. :)

Two things my wife enjoys.

Audiobooks

Slide shows of her photos (family and from her past on a smart TV.

Yes, it is so heartbreaking.

Waving to you all

Kevin

HilsandR profile image
HilsandR

The best gift you can give him is your time, it's as simple as that. Feeling loved will be priceless for him. Sadly, people often walk away from situations that they find hard to deal with, as many on here will vouch for, just be there for him and his family. Best wishes to you all. HilsandR

AJK2001 profile image
AJK2001

Does he like nice toiletries, my Dad (not a PSP sufferer) always enjoyed getting nice toiletries as a present & also clothes. For my Mum (PSP sufferer) I have found a wheat pillow that can be warmed up to soothe stiff neck & shoulders, lightweight fleecy rugs and wraps (can be draped round shoulders rather than all the hassle of finding sleeves) and probably the most successful a fur (fake) muff - so much easier than putting on gloves, acts as a place to keep tissues, has a ribbon to put round neck so doesn't fall off and get lost and can be stroked - we have taken to calling it the cat as she sits with it on her lap, stroking it - seems to soothe her.

doglington profile image
doglington

I agree that time, even if it means sitting and holding their hand. Is the most precious thing.

Also soft fleecy things. Love the idea of the muff !

Chris also liked having his hands and feet massaged gently.

Love Jean xx

katras profile image
katras

As a Psp sufferer, I almost always have a fur throw on me to keep me warm (faux fur & washable). That would be wonderful. The fur muff sounds great— I have to look into that.

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