Stem cell therapy for PSP: I am reading... - PSP Association

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Stem cell therapy for PSP

Bhakthan profile image
9 Replies

I am reading quite a lot on Stem cell therapy for neurological brain degenerative disorders being done in China and now in Japan. Stem cells are available in abundance in sub-cutaneous fats in everybody. I am willing to try this for my wife's PSP, but financing it is the issue!

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Bhakthan profile image
Bhakthan
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9 Replies
Kevin_1 profile image
Kevin_1

Hi Bhakthan

Did I blink and miss something?

I know there is a lot of research going on with stem cells for the treatment of PSP, CBD and others, but I didn't think it was available yet.

Are there any links you could share? I'm very interested.

I'm so sorry to see your wife suffers from PSP.

Your posts are so well informed and helpful. Thank you

Waving at you.

Kevin

easterncedar profile image
easterncedar

There have been a few people here who have tried this over the years, one I think in Florida and one in Texas, perhaps. You might try the search function here to find out the details. I believe one person thought there was a temporary slowdown in the progression of the disease, but no ultimate long-term benefit has yet been reported on this site to my knowledge, and there does not seem to be scientific support for this. Experimental only - and it's a very expensive experiment.

ketchupman profile image
ketchupman in reply toeasterncedar

That would be me. :-) I took my wife down to Delray Beach, Fl back in 2014 for stem cell therapy which was run by StemGenix. Not a fancy place; was done in a dermatology office. Not sure if they still do it there are only in the main location is Lajolla, CA. Costs me $15,000. They’ve had a class action lawsuit against them for misleading advertising. But I didn’t want to participate as I knew it had limited chances of improving my wife since she was so far into the disease. But they injected some of her cells in her lower back due to her leg pain she had (bad discs in L4/L5). It had a tremendous effect on that and was worth the price alone (to me). I’ve heard that the medical director at CurePSP doesn’t believe stem cell therapy can help treating PSP and to not waste your money. At some point we will try to do anything to save our loved one, regardless of the cost.

Ketchupman

Bhakthan profile image
Bhakthan in reply toketchupman

Thanks for the reply and experience. For my wife, I found that there is a tightening of the muscles. She clenches her left hand. Her vocal chords are no longer flexible and her throat muscles no longer function as they should and she has great difficulty in swallowing and talking with sound. Her brain cannot direct her body actions to respond to her commands, as I find that she wants to do something but helpless about dealing with the unresponsive self! Dopamine isn't helping. Waklert isn't helping! It's a slow shutdown of her self! Trying Ayurvedic Treatment, with food for the brain, but so far no results!

But turmeric with coconut oil is keeping away any sort of infection!

Bhakthan profile image
Bhakthan in reply toBhakthan

You people in Australia, UK and US are lucky to have State aided health care, India hasn't woken up to health and welfare! Life's tough!

easterncedar profile image
easterncedar in reply toBhakthan

Not so much in the US.

Baytalon profile image
Baytalon in reply toBhakthan

Easterncedar is right. Little assistance here in the US. Medication costs are horrendous

enjoysalud profile image
enjoysalud in reply toBaytalon

Agree!

anis_attar profile image
anis_attar in reply toBhakthan

Hi Bhakthan,

Did you tried the Stem cell? Please update the details..

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