PSP

[sonikaKharb]

Hi , Can anyone suggest me best doctor for PSP treatment in delhi..My father has PSP from 3 years.....

[abilitydesigns]

Hi Sonika, if i'm not mistaken, "PSomani" ( healthunlocked.com/user/pso... ) on this forum is from Delhi ( caregiver for his mom with PSP ). If you DM him, he might be able to guide you.

Unfortunately, PSP is a "progressively degenerative" condition & the options are limited.

If your mom has swallowing issues, consult a multi-disciplinary team of : Neurologist (specializing in movement disorder family of ailments such as PSP/CBD), Speech & Swallow Therapist, ENT.

Most patients, after swallowing food / pureed' food becomes almost impossible without choking, are suggested to go for PEG tube feeding.

Personally, i'm from Mumbai (Bombay), India. Cared for my mom with PSP for 4 Yrs. Lost the battle last month. Feel free to DM if you need any PSP references in Mumbai or any PSP questions.

[sonikaKharb in reply to abilitydesigns]

Thanks i will discuss with Psomani

[vram in reply to abilitydesigns]

Hi,

My 81 yr old dad has been diagnosed 6 months back as having PSP during an OPD visit by

a doctor at Jupiter Hospital (Thane). Previously we had

thought he was suffering from PD for the past 5-6 yrs.

By now he has lost most mobility, voice and feeding is also getting to be a challenge.

I saw your post above and was wondering if I can contact you to know of

your experiences dealing with your mom and PSP. Thanks

[PSomani]

Hi. I am based in delhi NCR ... will connect with you separately

Anshuman

[PraptiKedia in reply to PSomani]

Hi, My father was suffering from PD from last 5 years approx, Last January we were told its PSP. We are really saddened & hurt seeing him suffer from such an uncommon incurable diesieas . Please lemme know if anything in particular help you with your mom so that we can try it out. Recently he started having hallucinations and we are very worried for him.

[PSomani in reply to PraptiKedia]

Hi. Will send you a separate message

Anshuman