One of my husband’s symptom, as I mentioned in the past, is flailing as he doses off on his chair, followed with drooling, incoherency, weakness in his legs and unable to speak clearly (stroke-like). This lasts about 20 minutes. We are visiting our son in Toronto and he got all in a panic because I would not rush him to the hospital. I do not do that anymore because he recovers. Yes, it frightens me every time, and yes, I do worry that I may not read him correctly but cannot be requesting ambulance every time.
Is there anyone out there that experiences this and please respond to this, letting me know what you do each time. Sometimes I am made to feel inadequate and am very sensitive to someone questioning me. My husband has now had PSP for 12 years and definitely progressing downward - slowly!
Vera
did anyone have other symptoms prior to psp
PSP 
PSP 
Psp
Dad never exhibited the flailing you mention. As far as calling an ambulance when it happens, dad's doctor gave me some good advice. Lots of blood, possible broken bones, head strikes, breathing issues, possible heart attack all need to be handled by medical personnel. Unfortunately many things are a symptom of these disease and just have to run their course. I've spent many hours in an ER just to be told by the staff they aren't sure what has happenex and be sent home no wiser then I was before.
As for people making you feel inadequate by questioning your methods, well let's just say I've put more then one person in their place for comments they've made. As dad's doctor said..I knew more about the disease then he did and he learned things from me.
Thank you so much for your response and encouragement. I just have to continue looking after him the best I can and when I cannot, will deal with it then.
💕Vera
That is such good advice about when to call an ambulance, sitting in A&E just to be told we don't know does nobody any good least of all the patient.