Little update on dad - Pregabalin

[Liz_L]

Well, this is a nice update, for a change. I finally pushed harder about my suspicions that his shoulder pain was related to nerve damage, and the doctor decided to put him on Lyrica (pregabalin) to see if that would help. He started the new meds Tuesday evening, and when I saw him Thursday I was so surprised at the improvement. His pain had decreased substantially, the movement in the left arm was better, his speech was much clearer, and he just looked better overall. I guess some of the worsening symptoms were related to the morphine, etc.

We're not fooling ourselves, of course, we know that this disease will continue to progress, but to have him with much less pain and able to communicate better (and feed himself again - I forgot to mention that!) is such a relief. The staff were all so happy too, to see him looking and feeling better.

Liz

[doglington]

Good to hear good news !

Long may it last.

xx

[Mikey12345]

Good for you!! So glad he has improved. Every patient needs an advocate.

[Liz_L in reply to Mikey12345]

It is exhausting work, being one of the advocates for someone with this disease. However, times like this make up for some of the struggles.

[Mikey12345 in reply to Liz_L]

I agree. It's very challenging. However, in the end, I wouldn't trade it for anything.

[JCRy]

Hi Liz,

My darling Ian has been on pregabalin for a few years concerning another condition, and I had no idea it could also be masking some of his PSP symptoms. I shall certainly remember this next time he suggests reducing his dosage!

I am so pleased to read your good news.

We must keep looking for the good news....There seems so precious little of it.

Thanks for taking the time to post.

Love, Juliet

[Liz_L in reply to JCRy]

One of the other positives about the medication change is that he’s not at the same risk of constipation as he was with the other drugs.

[Spiralsparkle]

That is great stuff and it gives such a boost when you can see your perseverance has given some improvement.

[Motts]

Good morning Liz

So glad things have improved for your dad and for you as his Warrior Woman.

I do not know much about medicine - is this one for pain ? or does it help in other ways too?

Sending you both HUGS - Granni B

[wear1947 in reply to Motts]

Hi Ribbbie, I am diabetic and my bowles have changing for better, since I took pregabalin. It is recommended for diabetic neurophaty. It has side effects. So you need a physician advice.

Hope this helps.

Elena F.