Posts - PSP Association | HealthUnlocked

PSP Association

9,568 members • 11,525 posts

All posts for November 2017

How much more can he take

Richard has been deteriorating lately. So glad he had the peg in. He still eats blended food but only small amounts and sometimes he doesn’t want that. He is...

Richard has been deteriorating lately. So glad he had the peg in. He still eats ...

•7 years ago

Intro

I am the primary caregiver for my 69 yr old wife. About 4 yr ago we saw initial symptoms in motor skills, speech and gait. Diagnosis went from movement...

I am the primary caregiver for my 69 yr old wife. About 4 yr ago we saw initial ...

•7 years ago

Diagnosis confirmed

We went to see Mum's consultant today and her 'query diagnosis' has been upped to a definite diagnosis of PSP. Part of me is relieved to have clarity, but we...

We went to see Mum's consultant today and her 'query diagnosis' has been upped t...

•7 years ago

Want to take advantage of all our features? Just log in!

or

Head protection

Just came across this - hope it helps someone (I am not affiliated) ADULT HEAD PROTECTION - Head Buddy ™ http://www.headbuddy.com.au/

Just came across this - hope it helps someone (I am not affiliated) ADULT HEAD ...

•7 years ago

Dad, my forever superhero (as well as mum!)

Just thought I'd post a pic of my dad, this is us 5months ago, a few weeks before he got his diagnosis. Like everyone else here I love him and mum so much. The...

Just thought I'd post a pic of my dad, this is us 5months ago, a few weeks befor...

•7 years ago

I'm finally in the group😪

I have been reading all I could on this group since my husband was diagnosed in June 2014. I think I was I denial a long time as things progressed so slow....

I have been reading all I could on this group since my husband was diagnosed in ...

•7 years ago

PSP and Apomorphine

My father's neurologist has prescribed apomorphine injections for "off-periods" when my father's immobility gets bad. He has recently been diagnosed with PSP....

My father's neurologist has prescribed apomorphine injections for "off-periods" ...

•7 years ago

Doing What I Can

I posted this 18 days and it had a very good response. Therefore. I'm reposting for those who hadn't seen the post or video. Thanks Months ago I posted that...

I posted this 18 days and it had a very good response. Therefore. I'm reposting...

•7 years ago

Botox?

My husband who is 56 was dx with PSP approximately 2 1/2 years ago. His hand has become claw like and he suffers from spacisity. He can't keep his eyes open....

My husband who is 56 was dx with PSP approximately 2 1/2 years ago. His hand has...

•7 years ago

Nearing the end

Mum is nearing the end of her life and being rid of this horrid disease. Mum was her normal self Monday, Tuesday felt abit off, DR came out Wednesday and said...

Mum is nearing the end of her life and being rid of this horrid disease. Mum was...

•7 years ago

Someone has to stick up for our families.

Well dad has been in a skilled nursing facility since mid-Sept. His needs became more then I could do at home plus juggle my wife and son duties. I looked...

Well dad has been in a skilled nursing facility since mid-Sept. His needs becam...

•7 years ago

Rapid deterioration

We have had a very eventful few weeks. Dad was discharged from hospital into a nursing home partially funded by CHC after a total loss of swallow. He regained...

We have had a very eventful few weeks. Dad was discharged from hospital into a n...

•7 years ago

Home from home...

Not quite but it is a lovely home that my Dad has been moved into. However, he phoned me yesterday to say he wants me to take him back home tomorrow when I go...

Not quite but it is a lovely home that my Dad has been moved into. However, he p...

•7 years ago

CBD and fits

Currently sitting in A and E, Mum has cbd and her second fit, first in was this time last year. Luckily she is in a home now so she was looked after and...

Currently sitting in A and E, Mum has cbd and her second fit, first in was this ...

•7 years ago

Drifting....

Mum has started to drift in and out, closing her eyes and then suddenly waking with a start. And seems a bit confused and unawarw of her surroundings. She's...

Mum has started to drift in and out, closing her eyes and then suddenly waking w...

•7 years ago

Speech suddenly deteriorated

Hi, my Mum has PSP, onset 2012. In the last few weeks her speech has become worse, I cannot understand her on the phone and face to face is difficult and...

Hi, my Mum has PSP, onset 2012. In the last few weeks her speech has become wors...

•7 years ago

New user from Ballarat, Australia

looking forward to reading posts. My husband has PSP and I don't know anyone else who has it, so I'm hoping to become better informed

looking forward to reading posts. My husband has PSP and I don't know anyone els...

•7 years ago

The PSP Chronicles Early - Mid Fall Update

Hi friends. Don't quite understand what's going on with the blog settings with wordpress and Facebook, cannot post the link or even copy and paste the article....

Hi friends. Don't quite understand what's going on with the blog settings with w...

•7 years ago

Bad lower back pain

I suffer with bad back pain just above the buttocks I can't bend or stand for to long I when I sit down I have trouble getting up i cant carry heavy shopping...

I suffer with bad back pain just above the buttocks I can't bend or stand for to...

•7 years ago

Not able to remember pleasure??

My husband seems in recent years to have lost the ability to remember pleasure/ happy times- this is getting much worse in recent months - is this PSP?? We...

My husband seems in recent years to have lost the ability to remember pleasure/ ...

•7 years ago

More News from Mayo Clinic

My husband recently had his second visit to Mayo. He had a PET scan , MRI and lumbar puncture. After the tests, we met with the doctor (A world renown...

My husband recently had his second visit to Mayo. He had a PET scan , MRI and lu...

•7 years ago

Feeling out of my depth

Hi, I'm New to this and not very good at talking about how I feel! Terry was diagnosed with PSP in March this year, having been ill for the last 4 years. I...

Hi, I'm New to this and not very good at talking about how I feel! Terry was dia...

•7 years ago

Excess of nasal liquids

My wife (11 years with a slow evolving PSP) suffers fromproducing large excess of nasal liquids (or semi-liquids)! That affects her respiration obviously,...

My wife (11 years with a slow evolving PSP) suffers fromproducing large excess o...

•7 years ago

Neck pain

Hi everyone Colin is experiencing a terrible pain in the neck, is this another symptom or could he have slept in funny position or something. He is also have...

Hi everyone Colin is experiencing a terrible pain in the neck, is this another ...

•7 years ago

Having a great holiday........

Five minute walk to here for a perfect Lisbon sunset ......... Full story when I get home. Patrick.

Five minute walk to here for a perfect Lisbon sunset ......... Full story when I...

•7 years ago

T.V. in Nursing Homes

Hi folks Someone posted a question about T.V. in Nursing Homes some little while back and I thought to post what we have done. I don't know if this applies...

Hi folks Someone posted a question about T.V. in Nursing Homes some little while...

•7 years ago

Driving license.

My husband has received a letter from DVLA. They want him to send his license back to them ( he sent it yesterday)and they will then issue him with a medical...

My husband has received a letter from DVLA. They want him to send his license ba...

•7 years ago

Restore gold

Hi everyone I was just listening to a video about Restore Gold has anyone one with PSP have any luck with this medicine? It sounds promising for Parkinson...

Hi everyone I was just listening to a video about Restore Gold has anyone one wi...

•7 years ago

Terrifying

Last night mum suffered the most horrendous choking episode. I really thought she was going to die. I felt so helpless... and I could see she was afraid....

Last night mum suffered the most horrendous choking episode. I really thought s...

•7 years ago

The aftermath.

Weĺl, ger was buried last thursday, 17 days after he died. He was received into the church Wednesday night for a short service. The church was packed. Next...

Weĺl, ger was buried last thursday, 17 days after he died. He was received into...

•7 years ago

Search posts

Latest poll

What are your main concerns as a carer?

Topics

All things PSP Association(138)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Archive

2024

Jan Feb Mar Apr May Jun Jul Aug Sep

Oct

Nov

Dec

2023

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2022

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2021

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2020

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2019

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2018

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2017

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2016

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2015

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2014

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2013

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2012

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec

2011

Jan

Feb

Apr

May

Jun Jul Aug Sep Oct Nov Dec