Just thought I'd post a pic of my dad, this is us 5months ago, a few weeks before he got his diagnosis. Like everyone else here I love him and mum so much. The sadness is always there but trying to do my best to live for the moment and make happy memories with him.im so sad of what PSP will bring for him, we're trying to be prepared but not to wallow in it.I brought him.to visit an old grand house he use to live in with his grandmother when he was young on saturday and to hear the stories (albeit a bit disjointed) was lovely. In a way since we found out about his condition I've been making an effort to find out a bit more about both my parents, who they wer, what they did and who they are now, which in a way has brought a new closeness.
Just thought I'd share a photo
Warm hugs to ye all
Written by
catherine_h
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Catherine what a lovely photo. I am so glad you are making memories while you can too. You should record him talking now before his voice goes. I wish I had done that! I have old recordings but none from before the time he lost his speech.
Have done marie!!! Thank god for modern technology ive been slyly recording voice and mini videos on my phone. Im sorry i dont have any recordings from before the PSP symptoms became obvious. It was this site that reminded me to do it!
Thanks Sammy, sorry to hear about your dad. I'm sure he still is with you in many ways. It really is a horrible condition. I hope your able to remember him before he got very ill. Do you stay active on this forum?
hi catherine - i am not very active anymore actually - i usually post if there is a question about caring... i took care of my dad when he was bed-bound the last 8 months of his life so there are a lot of things i learned on-the-job
actually, that's the unfortunate thing... i seem to have forgotten most of his pre-PSP memories... the trauma of seeing him in that condition for so long was very distressing for me - it's only 3 days ago that I missed him again for the first time, remembering how loving he was - when my sisters and i were young, my parents' friends had nicknamed my dad "motherly father" since, if we fell down and hurt ourselves, we always cried out for our dad rather than our mom - she was more reasonable and would say, get up, you are not hurt and my dad would go, oh my baby, did you get hurt, muah muah
I hope and pray he is happy and content in a life across-the-veil
You and your dad are both VERY handsome people. It is a gorgeous photo.
I find, looking back, that photos taken of my son between his PD Dx, his new PSP Dx, and his passing, helps me to better put things in perspective as I mourn my loss.
As thanks u for the kind comment.we both look a little worse now!!! I like to think dad looks proud in the photo. That must be so tough for you, loosing a son to this horrible disease. I'm sure he is looking down on u xx it is nice to share with people who know about the condition
Yes, sharing with those "in the know" is very comforting.
After my son died my body reacted..........sciatica that required a cane, neck that would not move, horrible stomach spasms, etc. Not all together. One would improve and than I would be attacked by another. Such was the nature of my grief. An 8 week Grief Group helped.
I am leaving early tomorrow for a week with my daugher and family up in Portland, Oregon. looking forward to it, but leaving sunshine to COLD RAINY weather. I do get spoiled being a native resident of Los Angeles.
Beautiful picture of you and your dad, sorry he was diagnosed with psp just a thought try to record his voice at times, wish I would have done that with my brother.
Thank you, we found out his diagnosis only a couple of weeks later,so I still find it hard to separate the two. He drove me to the church,last lift he ever gave me.I'm so glad I made a speech on the day thanking my parents. Mad to think a few months ago i had never heard of PSP now it's always in the back of my head
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My dad...
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My Dad
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