Botox?

[Melba123]

My husband who is 56 was dx with PSP approximately 2 1/2 years ago. His hand has become claw like and he suffers from spacisity. He can't keep his eyes open. We are presently waiting to see if the insurance will approve Botox for his hand and his eyelids. Has anyone else tried it? What were the results?

[Marie_14]

Melba I have no experience of it. However I know a lot of people have got Botox used on their loved ones eyes. It seems to have mixed results but probably worth a try? Your husband might be one of the lucky ones?

I have just read a post regarding using it on the hands. It seems one of the positives is that it makes it easier to clean the hands so hopefully not getting any infections? You will also be able to hold hands again?

Your husband is young to get this awful thing. So sad for you both.

I have a feeling there might be something on You Tube about PSP and Botox. However there are definitely some old posts on this site. Just do a search for it and see what you find.

Take care of yourself too?

Marie x

[5-4-3-2-1]

Dear Melba123, my husband is 58 - he was diagnosed with Parkinsons's in 2015 and re-diagnosed with PSP in 2016. We suspect that it started in 2012 already. At this stage he is 99% bedridden, cannot open his eyes, speech is almost incomprehensible and his hands are also starting to turn claw like. I asked my doctor and neurologist about Botox - both said it is because of the palsy that the eyes cannot open anymore and Botox will not help. Botox will relax the eyes even more. We have also considered accupuncture but there is no guarantee. Best of luck and please let me know the outcome. Regards Karen.

[Richard33]

Hi,

Ruth has had Botox for dystonia (muscle contraction) in her foot and it works. So long as they can find the right muscle (not as easy as it sounds always!) the Botox turns the muscle off for about 3 months and then it wears off and you may need another injection. There is no real downside to it as it is only temporary anyway. So it should work for the hands I imagine. But we have had no experience regarding the eyes.

Richard

[enzo501]

Melba,

My wife has PSP ...Botox given at 90 day intervals in her left eye have been one of the only positive things in her treatment in the last 4 yrs . As the 90 day period concludes the eyelid progresses down ..the new dose takes it back to being totally functional ....We (she ) tried botox as well for left foot dystonia (twice) and it was not effective . At our health care facility it IS covered if medical Not covered if cosmetic ...so our treatment is 100% covered ...about a $250.00 cost here .