Doing What I Can

[btuma6]

I posted this 18 days and it had a very good response. Therefore. I'm reposting for those who hadn't seen the post or video. Thanks

Months ago I posted that I had spent 26 days in the ICU with aspiration pneumonia. I was told it would return since I continue to aspirate. Coupled with that I have restrictive lung disease due to Parkinson presenting a neuro-muscle problem. They tell me at the current rate of decline I have a limited amount of time.

Rather than counting down the days until I die, I'm counting the ways I can make an impact.

Although I'm not near the speaker I once was I have spoke at 18 different support groups in the Portland, Oregon. Now I've had a professional tape a 37 minute discussion and put it on Facebook "Living with an Uncertain Future" facebook.com/groups/2917262...

I don't place this post to promote my video. I get nothing. I post it since all feedback is that it is a needed story for those struggling with the unknown. It has four points from four events that happened in my life. I hope that you will take the time to view it. It will be worth your time

Please share with others

Search Bart Tuma on YouTube or Facebook and you're there

[btuma6]

BEATING THE ODDS AND PREDICTORS I have been diagnosed with PSP Three years ago I was in the Intensive Care Unit at Oregon Health and Science University hospital for 28 days, many of those days on a incubator, and needing surgery removing a portion of my lungs due to Aspiration Pneumonia. I found myself back in the hospital several times with the same condition. At the same time in 2018 I was told I have Restrictive Lung Disease with lung functions, FEV1, of 45% and falling.

I had two groups of docs telling me to get my matters in order since my prognosis was 12-18 months of functional life if any life at all.

I committed myself to live life too the fullest. In all honesty that was a hard pledge to keep. My life changed with these predictions.

Surprise, surprise, I am still alive and functioning. I am still dealing with the progression of PSP. Areas are getting worse, but I am functioning.

I am writing this for one purpose. No one knows the future. Life expectancy are averages. Clinical studies are bell curves. Doctors are experts and very wise, but the human body and spirit are very complex.

My take away---- don't let an "opinion" become your fact.