Neck pain

[Helen119]

Hi everyone

Colin is experiencing a terrible pain in the neck, is this another symptom or could he have slept in funny position or something.

He is also have terrible panic attacks about the most ridiculous minor things, along with frightening dreams.

Any ideas on how to help him welcome please.

Love and hugs

Helen xxx

[Satt2015]

Hi Helen

My dad complains of neck pain, he has fentanyl patches, 50mg changed every 3 days plus paracetamol in liquid format 3 to 4 times daily x

[Helen119 in reply to Satt2015]

Brilliant thank you I will get on to the doctors xxxx

[Hidden]

I found a masseuse who comes to the house every two weeks to give Larry a massage. She does his whole body but will focus on his neck when it bothers him.

A forward head position in PSP is recorded. It stresses the neck.

[Helen119 in reply to Hidden]

Thank you Jeff will look into that

Helen xxx

[Kevin_1]

Hi

Liz has had a masseuse and now a physio - both helped a lot.

In her case Ibuprophen and Naproxen helped little.

Best

Kevin

[Helen119 in reply to Kevin_1]

Ok thanks Kevin, hope all is not too bad with you.

Love and hugs xx

[Kevin_1 in reply to Helen119]

Hi

To be honest this Nursing Home thing is a heart break. Liz so wants to be home. She came home this afternoon and slept on the sofa. The peace in her was wonderful. She asked to stay at home and it was so wrenching to say she couldn't.

So many tears, but we will get through this.

Love and hugs

Kevin

xx

[Helen119 in reply to Kevin_1]

Ah Kevin that must be heartbreaking, so feel for you and Liz. Be strong you know that your only doing your best for her.

Love and hugs

Helen xxx

[Kevin_1 in reply to Helen119]

Thanks.

I am doing my best. I keep telling myself that.

We will get the best of what we have between us.

Kevin

xx

[Tippyleaf in reply to Kevin_1]

It is do hard going through these momentous changes.

Take care

Xxx

[JantheNana in reply to Kevin_1]

That is so hard to hear.My Don was in hospital and nursing home the last 6 weeks of his life but we both thought it was only temporary.If we had known that he wouldn’t come back home it would have been heartbreaking for both.I can imagine your pain.

[Kevin_1 in reply to JantheNana]

Thank you.

I can only begin to understand your pain too.

Warmly

Kevin

[AmandaF]

Hallo, Helen,

Yes, my mother had neck pain too. I used local ibuprofen gels, massage and heat packs. In fact, it was one of the symptoms that seemed to ebb away over time and during my mum's last few months she no longer suffered from it.

It seems neck pain is quite a common PSP symptom. There are quite a few threads about it,

healthunlocked.com/psp/post...

forum.curepsp.org/viewtopic...

forum.psp.org/viewtopic.php...

I hope you find something that helps to alleviate Colin's pain, Helen.

Bet wishes, Amanda,

[Helen119]

Thank you Amanda these are really interesting and some good ideas.

Thank you

Love and hugs

Helen xxx