Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2017

Back From Mayo Clinic

We are back from our trip to Mayo Clinic in Rochester, Minnesota . We had asked to see a neurologist who we had read about and was well versed in Parkinsonism...

We are back from our trip to Mayo Clinic in Rochester, Minnesota . We had asked ...

•7 years ago

The Cough

Larry has had an awful sounding cough almost all day for the past week. It is loud and sounds like a car engine trying to start but not able to, just turning...

Larry has had an awful sounding cough almost all day for the past week. It is lo...

•7 years ago

Strength and Weakness

Charles is two patients. One, he is strong! Eating, drinking and all is well in that department. BUT......the impulsivity and the dementia comes and goes...

Charles is two patients. One, he is strong! Eating, drinking and all is well i...

•7 years ago

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What a turn around...

My dad had a terrible episode on Monday night, coughed up horrendous stuff including blood, high BP, low oxygen, everything went wrong and he nearly died and...

My dad had a terrible episode on Monday night, coughed up horrendous stuff inclu...

•7 years ago

Turmeric updates?

We came across some old posts on possible benefits of turmeric for PSP sufferers. Does anyone have any recent info on this? Cheers Val and Charlie - Qld...

We came across some old posts on possible benefits of turmeric for PSP sufferers...

•7 years ago

I am feeling so happy......

Yesterday Jayne came and did an amazing job cleaning my flat. She changed my bed and will now come every other week. She loved my apartment and also my glass...

Yesterday Jayne came and did an amazing job cleaning my flat. She changed my bed...

•7 years ago

Sad week

So this week we had the funeral of my Uncle Frank who passed from PSP . He was diagnosed 4 years ago or there abouts . For those of you who have read my posts...

So this week we had the funeral of my Uncle Frank who passed from PSP . He was d...

•7 years ago

Finality

I don't even know if that is a word, but I'm feeling it right now. As many of you know David died a couple of months ago, and the last two months have been...

I don't even know if that is a word, but I'm feeling it right now. As many of yo...

•7 years ago

Husband has psp feet ankles swelling

Hello my husband Charlie has been suffering with swollen ankles and feet for a while now, been to the heart dr thank god his heart is fine. But he is now...

Hello my husband Charlie has been suffering with swollen ankles and feet for a w...

•7 years ago

Strength?

Hi all I have not been dxed with psp/cbd and my current dx is YOPD. What I was wondering is when/how did you/loved one lose their strength? Was it gradual over...

Hi all I have not been dxed with psp/cbd and my current dx is YOPD. What I was w...

•7 years ago

Fundraising Update

Some of you may know that I have been raising funds and awareness for PSPA. I have received a tremendous amount of support from my work colleagues and friends...

Some of you may know that I have been raising funds and awareness for PSPA. I ha...

•7 years ago

Teeth cleaning

Hi all Any tips on how to keep the teeth and mouth clean? Cordsyl mouth gel has been mentioned a few times, has it been useful to anyone ? Mum lips, tongue...

Hi all Any tips on how to keep the teeth and mouth clean? Cordsyl mouth gel has...

•7 years ago

What a difference a day makes...😢

So mum has been doing relatively well all things considered but in the last few days it is proving almost impossible to get her to take her medication or eat....

So mum has been doing relatively well all things considered but in the last few ...

•7 years ago

Question about experience with finally being free of PSP

Hi all, I hope that this does not seem like an inappropriate question but it has been weighing on me for some time. I have read posts from carers about the...

Hi all, I hope that this does not seem like an inappropriate question but it has...

•7 years ago

Travelling with PSP

TRAVELLING with PSP Hi everyone. Thought I would tell you about how Ch and I managed to travel from Australia to Norway for grandchild christening and back,...

TRAVELLING with PSP Hi everyone. Thought I would tell you about how Ch and I man...

•7 years ago

Back and Forth

Last 24 hours of coughing have been so stressful and sad, sad, sad. Seems there is nothing that helps when it starts. So the nights are long and no sleep....

Last 24 hours of coughing have been so stressful and sad, sad, sad. Seems there...

•7 years ago

The end is close

So sadly my father's battle against this disgusting disease is almost over. I would not wish what I have suffered over the past few days on my worst enemy!...

So sadly my father's battle against this disgusting disease is almost over. I wo...

•7 years ago

My mum has PSP

Hi I am Angeline Amy and my mum who is now 79yo was diagnosed with PSP in 2013 after a series of falls and hospitalization , her neurologist finally ruled out...

Hi I am Angeline Amy and my mum who is now 79yo was diagnosed with PSP in 2013 a...

•7 years ago

Nearing the end

My dear dad became very poorly last night. Paramedics were wonderful, apparently he's been in heart failure the past few days. He came through the night but...

My dear dad became very poorly last night. Paramedics were wonderful, apparently...

•7 years ago

Getting around - wheelchair

Hello all My father was diagnosed with PSP about six months ago. He is still walking every day, but he is finding it very hard now. When, ultimately, these...

Hello all My father was diagnosed with PSP about six months ago. He is still wal...

•7 years ago

Slowly losing my Nan with cbd

Hey everyone My nana left hospital on friday night aftee she caught a chest infection, the doctors gave my nan up to 2 weeks to live. On Saturday early hours...

Hey everyone My nana left hospital on friday night aftee she caught a chest infe...

•7 years ago

Charlie

Hello all Charlie has been worse his eating is getting bad I'm finding myself having to feed him, his feet and legs are swollen everyday. We went to the heart...

Hello all Charlie has been worse his eating is getting bad I'm finding myself ha...

•7 years ago

As much infomation as possible.

Hello all, I hope/ wish high spirits to all today ☺️ I am a carer professionally. Here to find out and hear anyone’s stories regarding PSP as I am extreamly...

Hello all, I hope/ wish high spirits to all today ☺️ I am a carer professionall...

•7 years ago

Very difficult few weeks ..

Barry had UTI which may / or may not have set off the new normal. He is now bedridden and double incontinent which posses a new life of bed baths, changing...

Barry had UTI which may / or may not have set off the new normal. He is now bedr...

•7 years ago

Another pic

•7 years ago

Great tribute

Mike’s son, Adam, designed this t-shirt for his Dad. Mike was an accomplished musician and singer, and a retired police sergeant with 31 years on the job.

Mike’s son, Adam, designed this t-shirt for his Dad. Mike was an accomplished m...

•7 years ago

Stand Aid

Stand Aid Can anyone tell me if a Stand Aid can be used to move my husband from room to room. He is unable to walk alone and I am having a hard time holding...

Stand Aid Can anyone tell me if a Stand Aid can be used to move my husband from...

•7 years ago

Paraphimosis

Hi again - has anyone any experience with paraphimosis please? When the district nurse changed my dad's catheter today, she couldn't get the foreskin...

Hi again - has anyone any experience with paraphimosis please? When the district...

•7 years ago

Riding the PSP Seesaw

One good day, three bad, two good, four bad. And then of course, one good hour, two bad, two good hours, three bad. The choking comes and goes but never goes...

One good day, three bad, two good, four bad. And then of course, one good hour,...

•7 years ago

End of life plan

Hi all, my dad has been home for two weeks now, having been fast tracked. It turns out he should have an end of life plan in place, but he hasn't. I spoke to...

Hi all, my dad has been home for two weeks now, having been fast tracked. It tur...

•7 years ago

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