Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for October 2017

A bit of happiness....

Mum has started using a letter board to spell out words as her speech is pretty much non existent. It's been slow going and she gets a bit muddled up with the...

Mum has started using a letter board to spell out words as her speech is pretty ...

•7 years ago

Home to family

Ive just spent 11 days in northwick park hospital with hubby ger. He had aspiràtion pneumonia which didnt respond to 3 different types of antibiotic, the third...

Ive just spent 11 days in northwick park hospital with hubby ger. He had aspiràt...

•7 years ago

Wet room

Mick has a bee in his bonnet at the moment about turning the bathroom upstairs into a wet room I am undecided it will be OK short term but what happens when...

Mick has a bee in his bonnet at the moment about turning the bathroom upstairs i...

allotmentartist

•7 years ago

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A little humour for the carers.

http://www.carersuk.org/news-and-campaigns/features/gille-s-survival-guide

http://www.carersuk.org/news-and-campaigns/features/gille-s-survival-guide

•7 years ago

So unfair

This life is so unfair p.s.p. is so cruel. After being told he would not survive and after 4 weeks in hospital suffering from pneumonia my poor father was...

This life is so unfair p.s.p. is so cruel. After being told he would not survive...

•7 years ago

Palliative Care, (Continued).

CHC does not seem to exist in Sheffield. Apparently, according to two consultants from different hospitals, the most we are likely to get is what has been...

CHC does not seem to exist in Sheffield. Apparently, according to two consultant...

•7 years ago

Added to everything we don't live in a vacuum

You can fill in the blank with the many almost unbearable PSP challenges. Everyday we focus to live beyond their limitations. At the same time we don't...

You can fill in the blank with the many almost unbearable PSP challenges. Every...

•7 years ago

Thank You

Thank you to everyone here that expressed condolences, support and love after Mike’s passing. You have given me so much comfort. Last week we gave him the...

Thank you to everyone here that expressed condolences, support and love after Mi...

•7 years ago

Hello everyone

Hello I have pseudobulbar palsy. I've lost my speech and have difficulty walking but hey ho I love life and laughter.

Hello I have pseudobulbar palsy. I've lost my speech and have difficulty walking...

•7 years ago

Scaly skin and scalp

Dan Has unusually scaly skin behind his ears and his head. All of his skin is So dry. I put moisturizer on it, but it is flaky. Interestingly , he has more...

Dan Has unusually scaly skin behind his ears and his head. All of his skin is So...

•7 years ago

Problems swallowing

Dear all, My Mum who is 82 and has been suffering from CBD for around 3 years has a great deal of difficulty swallowing although a speech therapist has said...

Dear all, My Mum who is 82 and has been suffering from CBD for around 3 years h...

•7 years ago

Beautiful words - posted on behalf of Althea-C

Hi everyone, I'm posting this on behalf of Althea-C who, it turns out, has a very special way with words. She asked me to help her post this to the group,...

Hi everyone, I'm posting this on behalf of Althea-C who, it turns out, has a ver...

•7 years ago

Falling forward

Has anyone experienced just falling forwards and not backwards?

Has anyone experienced just falling forwards and not backwards?

•7 years ago

The time has come to get household help.......

I have just spent 60mins trying to get my duvet cover on. I have failed and now have the cover as a sheet with the duvet on top. My left arm seems incapable of...

I have just spent 60mins trying to get my duvet cover on. I have failed and now ...

•7 years ago

Do impacts knock the progression of PSP along ?

I've been idly thinking about this one a lot, it's something that I had noticed as Davids condition progressed, and since he has gone I've had a little more...

I've been idly thinking about this one a lot, it's something that I had noticed ...

•7 years ago

When will the suffering end😢

Spent the day with mum. Took her out in her wheelchair as walking is almost impossible now. She's in a catatonic state most of the time now. The hardest thing...

Spent the day with mum. Took her out in her wheelchair as walking is almost impo...

•7 years ago

Rehab Facility - Is this the right decision?

I'm so unsure of myself right now and also feeling I would be putting Paul in a short term rehab facility so I would have a break not to deal with it all. You...

I'm so unsure of myself right now and also feeling I would be putting Paul in a ...

•7 years ago

Finding it hard to cope with my nan's condition

Hello everyone I Haven't been on here for a while, my lovely Nanna has CBD for 4 years now, and i was just looking at all the old pictures and couldn't believe...

Hello everyone I Haven't been on here for a while, my lovely Nanna has CBD for 4...

•7 years ago

Feeling sad 😔

This is so true!

This is so true!

•7 years ago

Home

We are home from our lovely stay in Norfolk, so relaxing, a few accidents, but nothing major. Our son was amazing, our daughter was amazing, she helped us get...

We are home from our lovely stay in Norfolk, so relaxing, a few accidents, but n...

Yvonneandgeorge

•7 years ago

Care giver

My husband has PSP, starting to choke with saliva and mucus. Looking for saliva suction machine.

My husband has PSP, starting to choke with saliva and mucus. Looking for saliva ...

•7 years ago

Heartbroken

On Monday, October 2, my wonderful husband was freed from PSP. Mike was the love of my life, and although we only had five years together, I wouldn't have...

On Monday, October 2, my wonderful husband was freed from PSP. Mike was the lo...

•7 years ago

What year are we in?

I read many posts on this site wondering what stage people are at. I’m wondering what year I am in with Larry. Looking back it seems the fall he had in Fall of...

I read many posts on this site wondering what stage people are at. I’m wondering...

•7 years ago

Can gymnastics be the best therapy available today for PSP?

I submit to you these facts and reflections: 1) Today I found a marriage in which the man has been diagnosed PSP early, 7 months ago. He has taken our...

I submit to you these facts and reflections: 1) Today I found a marriage in whic...

LuisRodicioRodicio

•7 years ago

lundie loos

hi there, does mr lundie have an email address, not sure which would be better for me lundie loops or ptosis props.

hi there, does mr lundie have an email address, not sure which would be better f...

•7 years ago

Asking the right questions....

My mum was diagnosed PSP in February this year after being unwell for a few years. She is having a first a first appointment this week with the specialist...

My mum was diagnosed PSP in February this year after being unwell for a few year...

•7 years ago

Cataracts and PSP

Has anyone any advice on cataract surgery for PSP patients my partner has them in both eyes but the hospital has said there is nothing they can do, he has lost...

Has anyone any advice on cataract surgery for PSP patients my partner has them i...

•7 years ago

Has anyone got experience of Melatonin and Mangesium for sleep?

Hi I've been reading a book on Alzheimer's. Apparently sleep can become poor with that disorder too. Some folk had a lot of success taking Melatonin and...

Hi I've been reading a book on Alzheimer's. Apparently sleep can become poor wit...

•7 years ago

I have joined a research project.........

On Friday I spent 3 hours at St Woolos Hostpital, Newport, Gwent. The attached image explains the project and what is involved. Are there any other members of...

On Friday I spent 3 hours at St Woolos Hostpital, Newport, Gwent. The attached i...

•7 years ago

Swollen tummy

My guy stomach has swollen yesterday and he has been pooping and pee is not a problem, it feels hard to the touch. He started on lactulose twice a day a couple...

My guy stomach has swollen yesterday and he has been pooping and pee is not a pr...

•7 years ago

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