Strength?

[stanny7]

Hi all I have not been dxed with psp/cbd and my current dx is YOPD.

What I was wondering is when/how did you/loved one lose their strength? Was it gradual over yrs? Or instant like weeks a few months?

Just last 3/4 weeks I've felt really weak and can't get off the bed,toilet with out assistance.

Thanks Trev.

[easterncedar]

My guy, with psp, never lost his strength, per se. His balance and coordination were gone, so he needed help standing and sitting, but the worst of it came slowly on only 4 years after his diagnosis.

[JA10]

Hi My Mum (PSP) and Dad (MS) both find all their strength goes if they are fighting anything else like a cold or an infection. Don't know if that is the case with you though. Mum is getting weaker generally, but if she is well the decline is slow. JA.

[LuisRodicioRodicio]

I am caregiver of a person with PSP and I have not detected sudden losses of strength in the muscles.

I believe that initiating specific gymnastic exercises suggested by a rehabilitation physician would be helpful,

This is what we are doing with a person with PSP:

Gymnastic tables 6 days a week: passive in bed (Move all major muscles) and active (helped by 1 or 2 people): Go up and down 50 steps (Odd days), walk 200-300 m (even days), speech therapy exercises and exercises ocular muscles. After that he needs to rest at least 30 ' .

Without any scientific basis, only observation of four nearby neurological diseases cases, I have the impression that a specific program of intense gymnastics can slow down the disease in an important way and is more effective the earlier the disease is detected.

[Karynleitner]

My husband , a big strong guy, has definitely lost some of his strength. However, his doctor said that PSP itself does not cause a patient to lose strength.