PSP Association
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Sad week

So this week we had the funeral of my Uncle Frank who passed from PSP . He was diagnosed 4 years ago or there abouts . For those of you who have read my posts you will also be aware my mum has PSP . She was diagnosed 2 years ago now.

Mum is one of nine children .. now down to eight and is third youngest . All mums brothers and sisters are iof good health but although all research and what specialist say is there is no genetic link and it’s purely coincidental ... seems strange to me!

So it was a tough day for everyone on Tuesday especially for mum...

We will keep going and making every day a special one with mum.

I want to wish you all well and I think of you all often .. lots of love and prayers to you ALL..

Jude xxx

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I try to put the genetic link out of my mind but have to say that your post makes you think! I hope the day went well and that your mum coped with losing a brother from the szm wretched disease that she has been diagnosed with. I wish you and your mum well.

Love Kate xx

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Thank you so much Kate xx

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Thank you for sharing.

Hugs.

Luis

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Hello jude. 2 people so close to have PSP. Makes you think. Sad news for you all specially for your mum.

God bless. Marie

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this PSP was terrible My Husband Ben passed away Jan 2017 with this disease thank God he didn't go into advanced stages He suffered with it for 6 years mostly at home with me 10 months at Nursing Home I tried my hardest to keep him home but days got very worst bed bound swallowing issues bowel issues and cather issues but we tried to make the best of it if you can find what the best is we were married 45 years this past April I ran into a doctor today he told me he only new of 1 person that had this very rare not heritary or genetic he said just the luck of the draw grieving is hard I cry with music and sad movies but I must go on I know Ben is with me always I guess we are all given our life journey Carol2660

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Thanks for sharing.

Hugs and love.

Luis

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So sorry to read of your uncles passing.It is so tragic that two family members that have been diagnosed with this horrible disease.

Hugs to all

Dee

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Thank you Dee hugs back

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