Hi I am Angeline Amy and my mum who is now 79yo was diagnosed with PSP in 2013 after a series of falls and hospitalization , her neurologist finally ruled out parkinsons, and diagnosed PSP in early 2013. From then on it has been a tough ride. She is now unable to speak . Since February this year we had to admit her to an extended care hospital after managing 4 years from home. She is now on feeding tube , and urine catheter. It has been heartbreaking and painful to see my mum go through what she has been going through. Others cannot understand what this disease does to patients and their families, and I am tired trying to explain what we are going through. I miss my mum as she is fading away.