Hello to all my new PSP friends. My wife was diagnosed with PSP a month ago. She was originally diagnosed with Parkinsons about 2 years ago, but was re-dxd with this wonderful little disease last month. Who would ever think that one could be wishingt to get Parkinson's back? She just turned 52, and I believe this all started at least 3 years ago. I have been alternating between reading all of your posts, and reading a lot of medical info, studies, etc. I am looking for the loopholes. Have not found any yet. Still trying, desperately, to get my head around this.
My wife and I have been together since we met in High School. She is the love of my life and a beautiful, whip smart and high energy lady. A supermom and grandmom and world-class teacher who quit teaching 3 years ago because she couldn't stand at a blackboard or keep up with her students anymore, and couldn't understand why. She has been relegated to a walker around the house (which has dramatically decreased her falls vs. a cane), and a wheelchair for any distances over 100 yards. And as bad as that sounds, I realize that she (and I) are luckier than many others who have or are dealing with this dread disease: She is only in mild pain (neck rigidity), has no cognitive decline, and has blepharospasm, but no gaze palsy. And I have good insurance, and the ability to work from home most days. So as crazy as it sounds, I believe I have a lot to be grateful for (Hy, she married me and has tolerated me for 35 years, and that is more than I could ever wish). We have 4 wonderful and supportive children, and two beautiful grandsons. Two of our children are still in high school, and I worry a lot about what lies in store for them and us as this disease progresses.
Reading all of your posts has been educational, insightful, and terrifying at times. But I cannot tell you how helpful it has been, and how much I have gained from all of your posts. I only hope I can face the future with as much patience, love, hope and tolerance as I have witnessed in all of your correspondence here. I look forward to participating and I thank you all for your support and your sharing.