In more ways than one!!
1. I don't know why, but I don't keep in touch with you all anymore, and just realised my friends are all still here and I'm missing you xx
2. When I think I'm taking a few steps forward, I take nearly as many backwards.
Debbie
It's called grief Debbie! We are all going through exactly the same. You must be doing well though, if you take more forward steps than backwards. I am two steps forward, 10 back, some days, if I am that lucky. A good day, is the same forward to backwards.
We missed you too, I don't post that often, but still read all the time.
Lots of love
Anne
Not much changed, still sitting up in bed with my iPad! is this it, is this how the rest of my life is going to be?
I should at least pick myself enough to keep in touch with the wonderful people here. I found this site so addictive, and made soooo many friends
Love
Debbie xxx
Dear Debbie,
I know exactly how you're feeling, when you read all the posts on here (especially the new ones) it tends to make you feel worse and takes you back to the start of everything, but then you miss all the lovely people that helped you through your own crisis, it's a very tough one I must admit! My family keep saying I need to come off this forum but I can't help wanting to know how everyone is, maybe when I don't recognise anyone it would be the best time to leave,
Hope you are doing ok, love and big hugs....Pat xx
Debbie missed you too, been thinking about you. Anne and Pat hope you are both ok, always thinking about you all, still fighting PSP so tired 😴 love tonyou all. Yvonne xxxxx
Yvonne how is George? And you, sorry I've not been keeping in touch
Think I'm still fighting PSP consequences
Love Debbie xxx
Debbie he has another urine infection, coughing and choking a lot, this illness is awful xxxx sending you a big hug xxxx Yvonne x
I often think about you and George too Yvonne, that's one of the main reasons I keep on this forum!
I'm still struggling without Keith, please make the most of the time you have together!
Take care!
Love and big hugs...,Pat xx
Pat it must be hard for you, PSP it the worst illness ever, miss your posts. How are your grandchildren, the baby must be getting big? Hope all the children are surrounding you with love, the grandchildren love is the best ❤️. My grandsons today said to me sit down and have a rest we will tidy up for you, they did a good job, they are coming back tomorrow, to do some weeding. Pat my heart goes out to you, sending you a big hug. Yvonne xxx.
Bless you Yvonne you're an absolute treasure! Yes my grandchildren are definitely helping me through this, baby Callum is now 17 months old, he's so good and a little blessing in disguise as are the other two, they somehow make my life worth living! I look at them and I can't help thinking if I hadn't met Keith they wouldn't have existed! That gives me some strength to keep going, hard as it is!
Love and big hugs to you and George....Pat xx
How sweet of your grandson, Yvonne
So true
Pat only you know what is good for you? People mean well but they don't knoiw what you are feeling? I am still here as are so many others. I know everyone of us have gone through the same hell and people actually understand? Everyone is different and some are able to move on quicker. I am like you. I need this site! My friends are here and they are a support.
Lots of love to you.
Marie x
You know Pat, If I don't know the name , I don't click on it......for the very same reasons as you stated I don't want to go through it all again....I pray that the new ones on this forum make good and healing relationships like we have done...
AVB
Keep moving forward Debbie. I'm sure Fred would want you to enjoy life again. Every day I read the notice I bought, "Life isn't about waiting for the storm to pass, it's about dancing in the rain". Not always easy but it's helped me.
Sending you a big hug.
Lots of love.
Bev XxxX
Hi Debbie, I'm still here too and know exactly how you feel! Several steps backwards recently due to more difficult times in the family and still think of you all especially those still struggling with PSP.
Vicki xx
I'm sorry to see you, and many more who have lost love ones.Your name as well as other seem to have started on this site about the same time as me.My guy is still here but it's like trying to walk on egg shells.He is declining this week big time ,not liking it.My sanity is thinking that there is life after PSP, I don't want him to go but for him to stay is not what I would wish on my worse enemy
Lady and gents and siblings, children go forward knowing your love one's are proud of you for doing so.
Be daring,life is to frigging short
Dee inBC
Well said dw
Hi Deb
Yeah still here, your journey is over a new long one ahead. I remember hubby went quite quickly did'nt he, it will be no comfort to you but try and put some positivity in your life every day.
I practice mindfulness when my head is in a mess, plenty of literature out there and very simple techniques.
I kid myself that my life will get back to normal when our journey is over, but I am not fooling anyone.
Focus on the day.
Julie X
Seize the Day, Julie, Seize the day everyone! Dance in the rain!!!!
Go to your messages and You can have my email address and phone number and keep in touch as much as you like.
Georgepa
Aww Debbie, bless your heart! Don't feel bad!! We are all still here and here for you, when you need a chat or a shoulder to cry on! How have you been coping or have you not? Huge hugs x
We're all still here, Debbie.
Be kind to yourself. It was such a shock and so sudden, its no wonder you are still so lost.
Big hug from Jean x
Often think about you Debbie but thought you just wanted to cut links with all that is connected to this sh----y disease called PSP. Ben has just done his first respite for four nights and when I was home on my own I felt like I was practicing for life without him. My lovely friends were there to support me but I still wanted time alone to reflect without thinking about my next job in the caring role. If you fancy a day out to East Sussex feel free to contact me. Take care of yourself and hang on in there for life to get a little easier as time passes.
Love Kate xx
Hang in there
Debbie your husband went very quickly that must have been a huge shock? The pain of loss is the same regardless of when someone dies however. You have been trying to find your way through your loss and grief is awful.
Eventually you start to live again I am told!! I am taking baby steps! Not doing great but I am not going to push myself. It is a slow process.
Heady put it so well about the steps forward and back! I think I am doing reasonably well then something comes along to send me back goodness knows how many steps.
We have missed you too dearest Debbie! We are still here and it's great to hear from you. Interesting how many of us are still here? Probably because nobody else really understands except those who have gone through it?
So don't be alone. You have lots of friends on here who care.
Lots of love.
Marie x
Thinking of u. Support and others that know where u are at are important.
Good to hear from you Debbie. I lost my mum
1St March but still feel compelled to see how
everyone is doing X
Everything you are feeling is ....damn normal ....Most of your friends from this site are now feeling this thing called grief.....weird but true, but most of our loved ones from 4 years ago and beyond have died all within the last 18 months...our latest being Georgepa's lovely wife....
It's ok to feel these things....It may be good to keep a daily journal....write at least one thing that was good that day....the sky was blue...good! you saw the sky being what it needed to be! You saw a flower all by itsself....Good you saw the beautiful flower instead of the weeds around it!!! Your grandchild gave you a smile, kiss, present....whatever.....good you felt happy for a moment......
A step forward needs to be held on to even if you think there was a worse step backward....I am going through this process and can only speak like this while feeling the raw pain of death encompassing me.....at times the days are too hard but I get up try to see the lovely color of the sky through my tears....and I forge on....my knees are raw praying to God....Help me Lord let me have a reason to go on....He answers my prayer... in the blue sky; talking to my foster grandchild about that Caterpillar in his hand; sometimes it's just with the words of my kind friends here on this site....
Keep talking to us, we are still hear...so is God....
AVB
An in all these things, Whatsoever you shall ask in prayer, believing, you shall receive. Matthew 21:22
Feel so s'''t
Feel so guilty for how I'm feeling
I feel heartbroken
Bad Coughing
