Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2017

A very successful Cornish holiday.......

This is the view from the holiday house that we rent each year. To get to the small beach you have to negotiate a tricky narrow rocky path and the video link...

This is the view from the holiday house that we rent each year. To get to the sm...

•7 years ago

Sweet dreams

Hi all After three weeks in hospital and four years suffering from this awful disease my Alan died peacefully. Although I didn't post that often I have laughed...

Hi all After three weeks in hospital and four years suffering from this awful di...

•7 years ago

Just found this on the web

Writerspagestockyard.blogspot.com I was looking into the fruit soursop, and ran across this website. Don't have much faith in the article but PSP was...

Writerspagestockyard.blogspot.com I was looking into the fruit soursop, and ...

•7 years ago

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Runny Nose

My husband has PSP. His nose runs profusely every time he eats. I think I was given advice before about a medicine that helps this, but I can't remember now....

My husband has PSP. His nose runs profusely every time he eats. I think I was ...

Greenkerrycounty

•7 years ago

Enquiry about CHC

Please help. I am about to start asking for CHC for my wife and would appreciate any advice on what to expect and the best approach(s) to use. Many thanks...

Please help. I am about to start asking for CHC for my wife and would appreciate...

•7 years ago

Confused

Hi can anyone relate to this 4 and a half years ago my husband was diagnosed with parkinsonism but there was always doubts as he deterioted guickly he has...

Hi can anyone relate to this 4 and a half years ago my husband was diagnosed wit...

•7 years ago

Help,

I have just started a new job in care, staff are giving personal care in a toileting sling. I feel this is undignified. I prefer to transfer to a bed which...

I have just started a new job in care, staff are giving personal care in a toile...

•7 years ago

Helpful video for choking

These two video shows how to give alternative Heimlich Maneuver when someone is choking. Thanks to its posting on the CurePSP forum....

These two video shows how to give alternative Heimlich Maneuver when someone is ...

•7 years ago

What's a stutter when it's not a stutter?

I took dad to the art gallery (again, he wants to go there fairly often) yesterday, and he had a very odd speech problem that I'd not witnessed, and mom said...

I took dad to the art gallery (again, he wants to go there fairly often) yesterd...

•7 years ago

Hands together?

Charles always clasps his hands together. We communicate with fingers - one is yes, two is no - but since he holds his hands together it is very difficult to...

Charles always clasps his hands together. We communicate with fingers - one is ...

•7 years ago

Care issues

Hi All, not sure what I'm asking here...! We're at the "in between" stage with dad - mum is just 'trying to manage' with one care visit each week. Last week...

Hi All, not sure what I'm asking here...! We're at the "in between" stage with...

•7 years ago

Power packs

Thanks for all your replies, that is the beauty of this site. I have pursued funding both with wheelchair services and CHC, who have funded the hoist, but...

Thanks for all your replies, that is the beauty of this site. I have pursued fun...

•7 years ago

Gabapentin

Hi, after a little advise. My husband has CBD. The neurologist has prescribed Gabapentin. He is on 900mg three times a day. This is to try and controlled his...

Hi, after a little advise. My husband has CBD. The neurologist has prescribed Ga...

•7 years ago

What is next?

Hi I'm new to the forum and looking for some help. My mum was diagnosed two years ago after several falls and being told it was possibly Parkinson's and the...

Hi I'm new to the forum and looking for some help. My mum was diagnosed two year...

•7 years ago

PSP knowledge rare

During my hubby's weeklong stay in the hospital I only came across one medical professional who knew what PSP was,and that was a speech therapist.Mostly when...

During my hubby's weeklong stay in the hospital I only came across one medical p...

•7 years ago

Wheelchair power packs

Morning Went to mobility show yesterday with his nibs and sis in law, what a fruitful day! Seriously having to consider WAV car and powered wheelchair as...

Morning Went to mobility show yesterday with his nibs and sis in law, what a fru...

•7 years ago

New here/ feeding tube question

My mother has not had sufficient oral intake for a few months and is recovering from a urine infection. She failed to pass swallow assessments a year ago but...

My mother has not had sufficient oral intake for a few months and is recovering ...

•7 years ago

The big 50!

I often say to myself, 'make it to this Dad, make it to that'. Well he made it to my 50th & I'm so pleased, as was he, that he could celebrate this day with...

I often say to myself, 'make it to this Dad, make it to that'. Well he made it ...

•7 years ago

Infection

Hi all, So my dad had to go to A&E on Tuesday night where they diagnosed an aspiration pneumonia covering 2 lobes of his right lung. At the moment the...

Hi all, So my dad had to go to A&E on Tuesday night where they diagnosed an asp...

•7 years ago

What's next?

My beloved had to be taken to emergency room on Monday night with breathing difficulties.I thought pnenumonia but no.It is the hateful disease alone (plus they...

My beloved had to be taken to emergency room on Monday night with breathing diff...

•7 years ago

Birthday boy

Well George's birthday yesterday went to the hospice took some cakes, he opened a few presents, I left to come home at 1.30 to get ready to go back with all...

Well George's birthday yesterday went to the hospice took some cakes, he opened ...

Yvonneandgeorge

•7 years ago

Prism glasses

Wow what a difference these have made , rog was able to feed himself so much easier, long may it last . Off to the mobility show today, remaining positive but...

Wow what a difference these have made , rog was able to feed himself so much ea...

•7 years ago

Two weeks and counting

Two weeks ago Alan went into hospital with a urine infection since then two chest infections. He is only on fluid drip his ng tube taken out 4 days ago. They...

Two weeks ago Alan went into hospital with a urine infection since then two ches...

•7 years ago

3 days home

Hi all Well archie has been home 3 days and the dreaded infection has got hold again speech crap unsteady and wobbly when being moved breathing not good...

Hi all Well archie has been home 3 days and the dreaded infection has got hold a...

•7 years ago

The PSP Chronicles

https://wordpressco900.wordpress.com/2017/06/01/the-psp-chronicles-may-2017/

https://wordpressco900.wordpress.com/2017/06/01/the-psp-chronicles-may-2017/

•7 years ago

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