After three weeks in hospital and four years suffering from this awful disease my Alan died peacefully. Although I didn't post that often I have laughed and cried with all of you.
So pleased that PSP was cause of death
I shall carry on reading your posts and will give any help I can. No flowers at this funeral all donations to the PSPA.
Jeanette so sorry Alan has passed away, PSP is the most horrible illness ever, I hope you find some peace in your life now, I am sure Alan would want it that way Yvonne xxxx
Jeanette so very sorry that Alan has died. At least he died peacefully? He is also free of PSP at last? I hope you are alright as it's so hard to deal with.
Offering my condolences Jeanette and my heartfelt prayers to you.
I also am taking comfort in the replies you have received from others on this site.Some are from caregivers who still have their loved one and some are from those who have already experienced what you have just gone through.I am in the former category but am feeling that it won't be long until I am one of those who have lost their loved one.There is so much to be learned here and I am thankful for ALL of you! God bless each and everyone! Jan
Alan has found heavenly peace and now is the time for you to find earthly peace. It's been 11 months for me. Some days I find it, some days I have to look a little harder. But it's there and I know our loved ones would want us to have it. Peace to Jeanette.
Dear Jeanette. So very sorry for your loss, so bitter sweet, no more suffering from this terrible disease, take care of your self hugs to you. (Nettie. Jeannette.
Hi, Jeanette. Just wondering how you are doing. I'm still wishing I had my sweetheart with me in no matter what condition, and then I think that would be cruel to him. This aftermath is hard. So, how are you?
Don't know if you got my last response but all okish. This is the second husband I have lost you would think I would be be used to it. Both in horrible diseases but Alan's was the worse. Wouldn't wish that on anyone
Oh, dear. Twice widowed. That's awful. I am sorry.
I guess ok-ish is as far as I would say for myself, truth be told. I have been looking through our old emails today, and they make me happy while I am reading them, remembering that we were very happy for a good few years, but then so sad to realize what I have lost.
I hope you are taking care of yourself. It can be hard to do.
Hey ec, i'm doing the same thing! I got rid of some of B's med supplies yesterday that he didn't use....I tried to do the same with his walker...it didn't make it to the hospice I donated the rest of the stuff to.....
On a lighter note, one of my PTs just got married and honeymooned up in Kennebunkport ! What a unique place to honeymoon, or does is it rather common?
Don't know if I told you this before but I am collecting ashes on Monday so he shall be keeping me company in the wardrobe for a while until the start of the next football season when I can put a teaspoon of them behind the goalposts at his beloved QPR ground. The rest will stay with me for the time being.
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