Sweet dreams

Hi all

After three weeks in hospital and four years suffering from this awful disease my Alan died peacefully. Although I didn't post that often I have laughed and cried with all of you.

So pleased that PSP was cause of death

I shall carry on reading your posts and will give any help I can. No flowers at this funeral all donations to the PSPA.

Love to you all Jeanette

32 Replies

  • So sorry, Jeanette.

    I'm glad to hear he had a peaceful end. Condolences to you and your family.

    In time your memories of Alan as he was will dominate.

    Lots of love, Jean xxx

  • Thank you Jean x

  • Hi Jeanette, so sorry to hear that Alan has lost his battle with PSP. May he rest in peace, finally free from this evil disease.

    Now it's time to look after yourself. Remember, nothing has to be done today, or even tomorrow.

    Sending big hug and much love.

    Lots of love


  • Thank you. I think I am still running on adrenaline x

  • That will take a while to calm down, then comes the lovely numb stage. Enjoy both while they last!

    Always here if you need to chat.

    Lots of love


  • Dear Jeanette

    My sincerest condolences to you

    I'm pleased Alan's passing was peaceful

    Now please look after yourself x

  • Thank you so much x

  • Love back to you, Jeanette. It's a hard loss, I know. Peace, Ec

  • Thank you x

  • Jeanette so sorry Alan has passed away, PSP is the most horrible illness ever, I hope you find some peace in your life now, I am sure Alan would want it that way Yvonne xxxx

  • Thank you for the kind words x

  • Jeanette so very sorry that Alan has died. At least he died peacefully? He is also free of PSP at last? I hope you are alright as it's so hard to deal with.

    Take care of yourself.

    Marie x

  • Jeanette

    Such a short and expressive post.

    Our hearts are with you.


    Kevin and Liz


  • So sorry for your loss,at the same time relieved for you both to be free of this awful illness .


  • He is at rest now. No more living with PSP

    Condolences Jeanette. You will miss him but the wonderful memories of your life together hopefully will help through the time ahead

  • Sending a big hug, love and with prayers for you both. X

  • You have my condolences. Your husband can finally rest in peace and you can take comfort in knowing everything take could be done was done.


  • Offering my condolences Jeanette and my heartfelt prayers to you.

    I also am taking comfort in the replies you have received from others on this site.Some are from caregivers who still have their loved one and some are from those who have already experienced what you have just gone through.I am in the former category but am feeling that it won't be long until I am one of those who have lost their loved one.There is so much to be learned here and I am thankful for ALL of you! God bless each and everyone! Jan

  • Alan has found heavenly peace and now is the time for you to find earthly peace. It's been 11 months for me. Some days I find it, some days I have to look a little harder. But it's there and I know our loved ones would want us to have it. Peace to Jeanette.


  • So very sorry for your loss.

  • Bless you Jeanette. I'm behind you and trying to wait patiently. Also have donations to PSPA in place.

    Prayers for you and your family.


  • May Alan rest in peace now

    As you will.

  • Dear Jeanette. So very sorry for your loss, so bitter sweet, no more suffering from this terrible disease, take care of your self hugs to you. (Nettie. Jeannette.

  • I pray Gods peace f or you and your family.💔

  • Sorry for your loss now to take care of you xx

  • Hi, Jeanette. Just wondering how you are doing. I'm still wishing I had my sweetheart with me in no matter what condition, and then I think that would be cruel to him. This aftermath is hard. So, how are you?

    Love, Sarah

  • Don't know if you got my last response but all okish. This is the second husband I have lost you would think I would be be used to it. Both in horrible diseases but Alan's was the worse. Wouldn't wish that on anyone

  • Oh, dear. Twice widowed. That's awful. I am sorry.

    I guess ok-ish is as far as I would say for myself, truth be told. I have been looking through our old emails today, and they make me happy while I am reading them, remembering that we were very happy for a good few years, but then so sad to realize what I have lost.

    I hope you are taking care of yourself. It can be hard to do.

    Love, Sarah

  • Hey ec, i'm doing the same thing! I got rid of some of B's med supplies yesterday that he didn't use....I tried to do the same with his walker...it didn't make it to the hospice I donated the rest of the stuff to.....

    On a lighter note, one of my PTs just got married and honeymooned up in Kennebunkport ! What a unique place to honeymoon, or does is it rather common?

  • Hi Sarah

    Don't know if I told you this before but I am collecting ashes on Monday so he shall be keeping me company in the wardrobe for a while until the start of the next football season when I can put a teaspoon of them behind the goalposts at his beloved QPR ground. The rest will stay with me for the time being.

    Love Jeanette

  • QPR?

  • Queen's Park Rangers?

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