Posts - PSP Association | HealthUnlocked

PSP Association

9,266 members • 11,356 posts

All posts for June 2017

Thick Saliva - Confused

My mum is in late stages of this horrid illness. She has been on atropine drops which were working so well but now does not seem to be as effective. The build...

My mum is in late stages of this horrid illness. She has been on atropine drops ...

am2015

•7 years ago

32 Replies

Frequently falling face down

Hi everyone, I'm a woman in early-40s and trying to figure out my symptoms. Surfing for my symptoms got me on this site, though I don't know if this is a...

Hi everyone, I'm a woman in early-40s and trying to figure out my symptoms. Sur...

Rach7412

•7 years ago

28 Replies

OMG!!!!!! CHC

My god.what a rollercoaster week. Nurse from chc came to see if ger had enough "A"s to trigger assessment. He did so I started to get ready for next few months...

My god.what a rollercoaster week. Nurse from chc came to see if ger had enough "...

Duffers

•7 years ago

21 Replies

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Husbands feet

Hello all I was wondering if anyone else is expecting the bottom of your feet swollen my husband has psp and has been suffering a lot with pain in his feet....

Hello all I was wondering if anyone else is expecting the bottom of your feet sw...

Marg52

•7 years ago

6 Replies

Anyone got experience of Community Hospice Nurses?

Hi folks We have a community hospice nurse. Contact every fortnight alternating between telephoning and visiting. They sit and ask questions and assess and...

Hi folks We have a community hospice nurse. Contact every fortnight alternatin...

Kevin_1

•7 years ago

65 Replies

Happy

The boy is home, still poorly and probably will remain so , but we are so happy he is home. Thank you for all your good wishes Julie x

The boy is home, still poorly and probably will remain so , but we are so happy ...

Julieandrog

•7 years ago

7 Replies

Bowel issues

Hello everyone I am so please to have connected with a group of people who know what PSP looks & feels like. much gratitude. My mum has PSP it has its ups and...

Hello everyone I am so please to have connected with a group of people who know ...

Thriving

•7 years ago

19 Replies

On Channel 4 tonight

Dear all There is a programme on Channel 4 tonight at 8pm about BUPA Nursing and Care Homes and what has been going on. One of them was a home recommended by...

Dear all There is a programme on Channel 4 tonight at 8pm about BUPA Nursing and...

Marie_14

•7 years ago

15 Replies

Sepsis symptoms

What are the symptoms of Sepsis? Dad's feet and hand appear swollen on one day and normal the next day. Appears green (dark colored) on certain days. all...

What are the symptoms of Sepsis? Dad's feet and hand appear swollen on one day ...

vidvv

•7 years ago

8 Replies

Nineteen and a half thousand a year!

We have had an Active Recovery team in, since B got home from hospital , he was barely able to stand, due to being in bed for a week. We have been awarded part...

We have had an Active Recovery team in, since B got home from hospital , he was ...

Robbo1

•7 years ago

16 Replies

Sepsis

The cruelty of this disease, 48 hrs after posting a little happiness rog is once again very poorly with urinary sepsis, a delay of four hours due to capacity...

The cruelty of this disease, 48 hrs after posting a little happiness rog is once...

Julieandrog

•7 years ago

14 Replies

Mother-in-Law 71 diagnosed with PSP

Hi, I'm new to this site, my mother in law has been told she has PSP, after being told she had Parkinson's. over the last year she has deteriorated badly. Has...

Hi, I'm new to this site, my mother in law has been told she has PSP, after bein...

Wardy01

•7 years ago

16 Replies

Morning to each and everyone

Morning to all Well Archie has finally been home a whole 2 weeks and he's not too bad It's me that's now not well . I cannot do anything for him as my...

Morning to all Well Archie has finally been home a whole 2 weeks and he's not to...

Suebatt

•7 years ago

14 Replies

CHC. First step over

We had the first step in our assessment journey today. My sister was with me to discuss Gerry and all his problems. Of the 10 domains, I think that's what...

We had the first step in our assessment journey today. My sister was with me to ...

Duffers

•7 years ago

13 Replies

PSP Connection

Is there anyone else in the Indianapolis, IN area caring for someone with PSP? I would really like to hear from you. Thanks

Is there anyone else in the Indianapolis, IN area caring for someone with PSP? ...

Greenkerrycounty

•7 years ago

3 Replies

Farewell, Rollie

I am very sorry to have to share the news that our dear comrade Roland Doucet, Rollie, or "nomansland," passed away on May 5th. We had been in occasional...

I am very sorry to have to share the news that our dear comrade Roland Doucet, R...

easterncedar

•7 years ago

57 Replies

Feeding tube dilemma

I am faced with a dilemma.Don had a feeding tube installed 2 weeks ago after aspirating and being intubated.Now he has successfully come off the vent and is...

I am faced with a dilemma.Don had a feeding tube installed 2 weeks ago after asp...

JantheNana

•7 years ago

37 Replies

Husband and wife both diagnosed with rare neurological diseases?

My sister has been diagnosed with PSP, and over the past year, has gone from being a healthy, fully functioning woman to basically being on her deathbed....

My sister has been diagnosed with PSP, and over the past year, has gone from bei...

TKNO

•7 years ago

25 Replies

Recently diagnosed

I recently received a PSP diagnosis from an ophthalmologist mainly based on the inability of my eyes to look up. I'm waiting for an appointment with a...

I recently received a PSP diagnosis from an ophthalmologist mainly based on the ...

Barbara-41

•7 years ago

16 Replies

Power pack!!

Morning everyone Power pack fitted new lightweight chair as well, first journey out to the shops , what a difference, able to walk from home through the park ,...

Morning everyone Power pack fitted new lightweight chair as well, first journey ...

Julieandrog

•7 years ago

9 Replies

Progression

Hi all My husband has CBD & this was affecting one hand that is clenched a lot of the time but not all of the time as yet. Now it seems his other hand is also...

Hi all My husband has CBD & this was affecting one hand that is clenched a lot ...

beau1988

•7 years ago

7 Replies

Supportive chairs for people with PSP

Hi all my father has been diagnosed with PSP for a number of years. He is now in the advanced stage where he has no speech, doubly incontinent and unable to...

Hi all my father has been diagnosed with PSP for a number of years. He is now in...

Curlie

•7 years ago

17 Replies

Dystonia in the foot and ankle.

Hi, My wife (58 years old with CBD or possibly PSP - they are not sure) has dystonia in the foot and ankle - painful when she walks. It is helped if she wears...

Hi, My wife (58 years old with CBD or possibly PSP - they are not sure) has dyst...

Richard33

•7 years ago

8 Replies

Appetite loss

Hello all I am currently dealing with appetite loss, I first expireieced this when I was sick back in February I literally was so sick and couldn't eat (in...

Hello all I am currently dealing with appetite loss, I first expireieced this wh...

Hidden

•7 years ago

10 Replies

Mood swings and Emotional outbursts

I am a care giver for my mother and new to the site. We live in a rural farming community in the US in which there is very little support, limited health care...

I am a care giver for my mother and new to the site. We live in a rural farming ...

scribefish

•7 years ago

21 Replies

bewildered

My husband had a stroke and heart attack and was advised to quit smoking 5 years ago. Instead he upped his nicotine and after taking several different meds...

My husband had a stroke and heart attack and was advised to quit smoking 5 years...

curliegurlie

•7 years ago

4 Replies

Holiday and CHC

We have just come back from four days at Blackpool, chosen because it has the Bond Hotel there. It caters for disabled people. This is a place with plenty of...

We have just come back from four days at Blackpool, chosen because it has the Bo...

Robbo1

•7 years ago

12 Replies

Replies to sweet dreams

Thank you everyone for all your kind words you sent. I appreciate them all. Take care everyone and make every day count Thanks Jeanette x

Thank you everyone for all your kind words you sent. I appreciate them all. Take...

Hidden

•7 years ago

1 Reply

My three middle fingers from my right hand are numb can someone please let me know if they know what's wrong with my

My three middle fingers from my right hand are numb can someone please let me know if they know what's wrong with me it's been 4 days am getting scared

My three middle fingers from my right hand are numb can someone please let me kn...

Bogg

•7 years ago

5 Replies

Question for the message board.

I'm new to the Dx of PSP. Is CBD in the family of PSP?

Hidden

•7 years ago

17 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

All posts for June 2017

Thick Saliva - Confused

Frequently falling face down

OMG!!!!!! CHC

Husbands feet

Anyone got experience of Community Hospice Nurses?

Happy

Bowel issues

On Channel 4 tonight

Sepsis symptoms

Nineteen and a half thousand a year!

Sepsis

Mother-in-Law 71 diagnosed with PSP

Morning to each and everyone

CHC. First step over

PSP Connection

Farewell, Rollie

Feeding tube dilemma

Husband and wife both diagnosed with rare neurological diseases?

Recently diagnosed

Power pack!!

Progression

Supportive chairs for people with PSP

Dystonia in the foot and ankle.

Appetite loss

Mood swings and Emotional outbursts

bewildered

Holiday and CHC

Replies to sweet dreams

My three middle fingers from my right hand are numb can someone please let me know if they know what's wrong with my

Question for the message board.

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive