We have just come back from four days at Blackpool, chosen because it has the Bond Hotel there. It caters for disabled people. This is a place with plenty of equipment and very supportive staff. I booked a carer to get B up, showered and dressed each day. It also has entertainment at night.
My husband has just had a peg op. But he still eats and drinks, so much of our time was taken with feeding one way or another.
We did manage to get out, although the weather was not kind to us. The trams are really great for wheelchairs. There is a spot on the platform where you wait and the tram stops with the disabled friendly door and a conductor right in front of you. We did most sightseeing by tram and found the staff superb. With nice, big windows to look out of and sheltered from the wind, we enjoyed our outings. Apparently, the buses are all wheelchair friendly too.
The letter was waiting for us when we got back home. B has not got full CHC but part funding. I gather the NHS and the SS will fight it out between them. I am so exhausted with everything. He can do very little for himself. I know we won't get financial help from the SS as we have over 70 years working life between us so we have pensions. Also, my husband's pension is a "Drawdown" one, so they will regard the lump sum as savings, although, without it, he would have no pension.
I am past caring.
Any advice on the next steps would be welcome. Should I appeal ?I have six weeks, so maybe I will wait to see the outcome. We already pay over £400 per month for morning calls and I am going to have to increase these to evening soon as well. I am not complaining, having worked most of our lives, we are better placed than many people, I just wish we knew what we would have, so that I can manage the situation.
At present, I am bone tired. I know that many of you out there know just what I mean! X
CHC DST Meeting tomorrow
