The cruelty of this disease, 48 hrs after posting a little happiness rog is once again very poorly with urinary sepsis, a delay of four hours due to capacity issues administering IV meds we are now facing another frightening time. Lovely fathers day planned for him not happening now.
Julie x
So sorry to hear your news. PSP is an exhausting , wicked tyrant.!! Sending you both a big hug and prayers. Rx
Sending big hug and much love. Hope Roger recovers quickly. Steve always use to, after a big slug of antibiotic. Sepsis is a posh word for infection, it's to make the medical team, seem as if they know more about Rogers condition, than you do!
Lots of love
Anne
Oh Julie , I'm sorry, for both you and Rog.....cruelty indeed.....
Awe I'm so very Julie! This is the problem one minute everything is ok (Psp ok) and then bang, everything goes wrong! Sending you both lots of love x
I hopethings improve quickly, .....Brenda
Julie thinking of you, Rog will get through this, saying a prayer for you both xxxx
Another problem thrown at poor Rog and yourself, I hope the antibiotics soon kick in and sort him out. I bet it seems that the health problems are never ending. Love to you both.
Kate xxx
Hope he is soon feeling better, what rotten luck. PSP seems to take us all from one challenge right on to the next!!!
Xxx
Since those of you who read my posts probably have gotten the idea that I am willing to try things out of the ordinary in tackling PSP and its symptoms...so you may think I am off my rocker. And this is totally anecdotal, and knowing that, my husband was having the not uncommon painful UTIs. He had a bad reaction to finasteride, commonly recommended to treat enlarged prostate. So what to do? I happened to hear a video from Andrew Saul who promotes large doses of Vitamin C, not unlike Linus Pauling. So I have been giving my husband 18-20g of Vitamin C daily. It is an anti-inflammatory. It does not build up in the system. He gets it in powdered form dissolved in juices. The good news....His painful urination has gone away, he has better control of his sphincter muscle. He has not had even a hint of a UTI in months. Yes, his neurologist knows. It is also purported to work on sepsis. Can't hurt, might help.
Best to all, Christine
So sorry to hear.
Sorry about the situation, Julie. Wish Rog bounces back quickly.
This has triggered a question on Sepsis from me - will check in a different thread.
My boy is home ,poorly but home, x
Glad he is back home. mum had sepsis last year and was so poorly with it. Hope he is feeling better by just being back home and starts to improve day by day
Starting neuro-rehabilitation
High temperature and chest infection
Falling asleep while eating
Found the answer to my previous question 
