I am a care giver for my mother and new to the site. We live in a rural farming community in the US in which there is very little support, limited health care and no pertinent information available so we are looking to connect others who are in similar situations. We are 4 and a half years into a diagnosis of CBD. Mom (age 58) is in what I would consider advanced stages. She is completely wheel chair bound, and experiences most, if not all, commonly listed symptoms found in online research. (Our health care team is basically lost on how to proceed as only 2 cases have been reported in my whole state.)
In the last few days, I have noticed Mom has been experiencing mood swings and emotion outburst which are very uncharacteristic. Words come to her slowly and she often gets confused or forgets small things. She has become withdrawn, and begun to avoid friends and family because "her condition embarrassed her." She has began to randomly cry even in the middle of conversation. She is frustrated, which is completely understandable. We work really hard to reassure her that people love and respects her as well as understand that she is doing very well with the hand she has been dealt.
I have found very little on emotional aspects of CBD and am wondering if others have experienced similar behavior. Is the just a new symptom or just a stage of grief that she may be experiencing?