Progression

[beau1988]

Hi all

My husband has CBD & this was affecting one hand that is clenched a lot of the time but not all of the time as yet. Now it seems his other hand is also starting to clench at times. My question is, is this usual? I thought it would affect the foot on the side affected first not the other hand. Not sure why I think this. Does anyone have any info.

TIA

Kerry

[easterncedar]

I think it varies from one person to another without much reason. My guy was affected first by a weakened leg, and then his hand on that side and then the other hand, but the clenching, quite strongly, came and went on both. Impossible to predict.

[beau1988 in reply to easterncedar]

Thanks for your reply

[Cuttercat in reply to easterncedar]

Charles too. One leg and then the clenched hands and now crossing legs all the time. Strange and yes, unpredictable.

Cuttercat

[ketchupman]

My wife had PSP, but there was a lady with CBD that came to the Atypical Parkinson's Support Group that I lead each month. She started out having only one hand clenched, but ultimately both hands were. I don't recall her ever mentioning a problem with her feet.

Ketchupman

[beau1988 in reply to ketchupman]

Thanks. Not sure which is worse 2 hands or hand & foot. I guess time will tell.

[scribefish]

My mother who has CBD went the opposite. It went from her right foot into her left. Now it has moved into both arms almost simultaneously. Momma does complain that her left arm hurts more often then the left but her strength test is the same in both.

One of the reasons CBD is so hard to diagnosis and raise awareness of, is because the progression seems to be different for everyone.

[Jafarrar]

My husbands CBD started on his left side foot and leg then his left hand and he could not balance or stand it is now affecting the right leg foot and right hand some what. His speech is getting worse and he droll s a lot.Has not walked two years. He is starting to forget people even his girls name some ,he looks down all the time. I don't know how you know what stage he is in ? His general doctor put on hospice due to his diagnosis. I don't know if we did the right thing. Has anyone had any experience with hospice?