Hi, am new to this page. My Dad suffers from PSP, it's a really crappy disease and there is such a lack of information out there for families. We are at the stage where we know more than the doctors. Most of our information has come from here from all of for your posts and personal experiences, thank you x.
I would just like to ask you have any of you experienced body temperatures being totally out of whack ie. when we are cold he is roasting and when we are warm he is freezing. Doctor doesn't seem to know if it's related to PSP.