I would like to thank you all for the kind words you have written, the help and advice you have given me whilst trying to understand this awful disease.

There are times when you feel the need to get the anger, hurt and sadness off your chest but cannot talk with family or friends. This is when we all turn to our extended family (you guys) knowing you will say the right things and feel our pain but never judge. I want to say that there has been many a time when I have felt it's all been too much but then I would read a post and it would help me to put things in perspective and give me a kick up the rear or put a smile on my face from a funny post so thank you all.

There was one thing I completely forgot to mention and that was dads death certificate, yep you've got it guys another one for the team PSP was noted as the cause, so just wanted to share this as I know it's so very important that this gets recognised.

Sending you all lots of love and hugs xxxx

3 Replies

  • You are right Millie, I would never have survived either, without this site. Even now I am getting help and comfort. No one else can understand, the looking back and only finding PSP, in Steve's behavour. I am told it was just him, being a man, getting old, etc., etc., but I know the truth, because you have to live with PSP to truly understand.

    Glad the doctor recognised PSP on your Dads death certificate, but did the Resistor know what it was????

    Sending big hug and much love

    Lots of love


  • Good question, no she didn't but she does now ha ha xx

  • Ours didn't either! Took him half an hour and several phone calls to confirm the existence of PSP.

    Lots of love


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