Hi, S is in hospital AGAIN!!! Urine infection which caused his Catether to block. I have been trying all weekend, with the help of the rapid Response team, to keep him out of the bloody place, but to no avail, had to phone the team again at 5.00am this morning, they came at 6.00 and the ambulance was called! I am fed up of going to that place, it's not right,to know your way around a hospital. It's not right, to just take it in your stride, that your husband is in hospital! I think he is OK, his kidneys aren't happy, but have been reassured, this will improve, once they get fluids and antibiotics into him. Didn't help when doctor took me into a private room to have a "chat"! Just wanted to know if S had a DNR in place, when I said no, did I want him to have a chat with S!!! Can you imagine, you are sick, have PSP and the quack wants to talk about DNR's! Thought I had found a good doctor until then!!! Honestly, I promise, I was very good, very politely, said I didn't think it was a good time to discuss this with S!!! Are they really on the same planet as us, or are we on the wrong one?????
Least they actually asked the question about what care package I have in place, so have already decided that he will be in until at least Wednesday afternoon, so I can cancel my Carers. More importantly, relax, knowing I haven't got to bring him home tomorrow, feeling totally exhausted!
Just so you know, I am following my own advise, have cooked a decent meal, OK, I admit, opened a bottle of wine and I certainly don't intend to go to the hospital, until at the earliest, tomorrow lunch time!
Silly question, but when you telephone a care company to tell them not to come, because your husband is in hospital, what part do you think I might be getting wrong? They have just turned up to put S to bed!!!
Only another ordinary day in the life of PSP!!!
Lots of love